Yana is a 6year old little girl who has cystic fibrosis, she is a care free little girl with a zest for life and a personality to go with it. Yana lives at home with her mummy and daddy, her two older brothers and two sisters, she was diagnosed with cystic fibrosis at just 3 weeks old through the heal prick test. Yana just takes every day in her stride, all the medication the blood test, scans, xrays nothing bothers her she is truely our little hero.
Cystic fibrosis is an inherited disease caused by faulty gene. This gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food. more than 2.5 million people in the uk carry the faulty gene, around one in 25 of the population. There is currently no cure for cystic fibrosis but there are many treatments available to manage it, including daily physiotherapy, excercise, medication. Each week five babies are born with cystic fibrosis, and two people die. More than half of the cystic fibrosis population in the uk will live past 31. Many cf patients need double lung transplant but sadly there call never comes. This is why we as a family and our friends are trying to keep Yana has healthy as we can with lots of medication, physio and lots of trips to the hospital.
We are all trying to raise money for a physio vest, this will help to break up all the mucus and help free her air ways and my other organs on a daily basis. The vests are not available in the on the NHS so this is why we are fundraising to help pay towards it our Target is £10,000 but any money raised over the cost of yanas vest will be donated to other children in the same situation. We have raised some money already thanks to am great local business Rum runner and staff they have held and are holding lots of events to help Yanas fund. We also have lots of events coming up locally that we have arranged through family and friends. We do weekly carboots with what people have donated from the local area. The support we get is over whelming and unbelieveable considering they don't even know our little girl.
To find more out about cystic fibrosis the website is www.cftrust.org.uk