In August 2016, Vera was born and changed our lives forever. Vera was born absolutely calm, alert and quiet--the latter we would only later learn was a warning signing that something was wrong. Minutes after being born, she was rushed to the NICU and the fight for her life began.
For the next three months, Vera's life was hanging by a thread as she underwent some of the most advanced treatments available in the world at research hospital Stanford Children's in Palo Alto, California. Just one day after being born, Vera underwent heart surgery and was on a heart bypass machine called ECMO.
Her fight was excruciating for everyone around her as her prognosis grew dimmer every day. Doctors were baffled as to what was causing her very severe condition. However, Vera was not giving up. She fought against all odds and through every obstacle that was placed before her.
Today, Vera is home where we care for her around the clock. She needs constant oxygen, infused medication injections, oral medications and she can only eat by a tube through her nose. Her official diagnosis is idiopathic pulmonary hypertension. Idiopathic means there is no clear cause why she has this condition. We ultimately want to find a cure for Vera and other children who share her rare and serious condition.
Thus, we are forming Vera's Hope Foundation, a non-profit whose mission will be to raise awareness of pediatric pulmonary hypertension and ultimately find a cure! Our 501(c)(3) status is still pending but any donations made today are still tax deductible. Help Vera PHight today!
Here are some of Vera's immediate needs and things we have recent purchased:
- NG tube weaning (eating therapy) program: $6000
- Portable oxygen concentrator: $4000
- Pharmacy deductible: $4000
- Non-profit legal and creation fees: $1200
- Backup generator (for oxygen): $1000
- Misc. medical supplies not covered: ~$6000/year
Vera's Hope Foundation