There’s no other way to put it—my 3-year-old daughter, Mina, is dying. I lie by her side every night when she sleeps and my heart bleeds. My face burns from the tears.
Mina could be your child. She splashed in the pool, begged for chocolate ice cream, and sang her favorite songs. She rode bikes. She skied. But at 2 years old, she started to fall over, to bump into things. She pulled books in close, got stuck on words. She was finally diagnosed with Batten Disease, a rare fatal genetic condition that robs normal children of everything. They end up bedridden, on a feeding tube, with seizures, and cognitively impaired. There is no cure... yet.
We were given no hope. But we discovered that scientists are just now able to STOP and even REVERSE genetic diseases like Batten. So we fought day and night and have raised over $1.5M to fund the science that could lead to a cure.
Our tireless work and YOUR incredible support have paid off. Mina will receive a new and potentially LIFE-SAVING treatment this August. It seems unreal.
Mina is rapidly declining every day. Our team of scientists is working around the clock to make this treatment happen as soon as humanly possible. But Mina's future is still unknown so we are continung to raise money so we're prepared for the unexpected costs. And we have already begun working on our next project that could compliment Mina's treatment and help many other children.