Weʼre raising funds to arrange an event to raise awareness and funds for Turner syndrome but in order for this event to go ahead, we need help!
The reason I am raising this money is because I myself have Turner syndrome, this a chromosomal condition that affects 1 in 2,500 girls. The money will be used to arrange an event to raise funds for Turner Syndrome Support Society and to also raise the awareness of Turner Syndrome. I am determined to raise the awareness of Turner syndrome because not even doctors know exactly how to treat the condition and many girls go un-diagnosed. This needs to change! I was diagnosed at 11 years old after years of my mum telling the doctors that there was something wrong,I only got diagnosed by chance, I had an allergic reaction while under anaesthetic.I then got sent to Cardiff for allergy tests and the doctor took one look at me and asked if I had been tested for Turner syndrome. I was then put on growth hormone treatment, this caused a variety of problems such a Snapping Hip syndrome and Scoliosis, every time i see a doctor due to illness they either mis-diagnose me or they say "It's just another Turner syndrome complication" this is always disheartening as when you go to a doctor it's to ask for help not to be told they can't even diagnose it let alone fix it. There are so many complications to Turner syndrome that doctors don't even know about, this really does not help as little knowledge can be a very dangerous thing. It has been known for doctors to make me worse when ill due to failure to diagnose the issue correctly due to my condition, this should not happen as a doctor should know how to treat you correctly no matter what not make you worse! The event will be a very special event held at the Swansea Liberty stadium, it will feature a buffet and a line up of stars performing. By helping me raise this money you are helping change this, you are making people aware of Turner syndrome and that is what is needed. So please share and give as much as you can.