My daughter has been suffering with a debilitating life long illness that was only correctly diagnosed 5 years ago. She has several endocrine disorders inherited from her father's juvenile diabetes and now suffers from gastroparesis, in which the nerve does not function in her stomach. She couldn't eat more than a tablespoon of food daily and suffers from constant gastric pain, vomiting and other issues that have caused her to drop to 58 pounds. She has not celebrated a birthday, holiday, meal out or any other family or social function all these years due to not being able to eat. We don't realize that the most simplest of social interaction most often takes place amongst food. It is almost impossible to comprehend how someone cannot eat. But it is very true. She has the chance of receiving surgery for an implant that will help the nerve function, cannot receive feeding tube as it will ruin success percentage , but needs various intensive supportive care prior to in order to be well enough, especially for the journey. We needed to travel all across the country in order to do so, had a place to stay for months and money for some of the medical expenses. I have sold my home in order to support the costs as well as being transferred to work there. We have just been given the opportunity to have extensive treatment necessary after waiting for quite some time and unfortunately do not have the available funds to secure a living arrangement for her special needs, apartment, nutritional support and medical supplies to do what is necessary. And unfortunately due to not having the ability to work any longer and no money other than benefits, we lost the apartment we had been staying in and are now forced to stay at a hotel on the airport miles away from grocery stores and other necessities and only was able to pay with my monthly benefits from work and have run out. She needs to be able to stay, I worked 3 miniscule retail jobs here as it was the only available option and no longer have any of them due to a severe heart condition I have had complications from since birth that has worsened from all the stress and need surgery myself again. Just don't even have enough for daily needs alone and can no longer afford. I made over $350,000 yearly before having her sick. I loathe having be in this scenario, asking for much needed assistance, and am accustomed to helping others, not asking for help. If I had the ability to fully provide for my daughter's needs, I would. It shames me that I cannot. My brother in law helped with all the money he had left in the world to help keep us afloat as long as possible to the point of him facing the streets himself. That is a very hard pill to swallow.is She had a massive setback 2 weeks ago due to a forced against wishes and her own Doctors advice hospitalization and is still suffering. It is the worst she has ever been. On top of the stomach issue killing her, she suffers from Addison's and severe Neuropathy. And found out due to severe calcium issues and bone deterioration, has lost most of her teeth, has a fractured hip, and has severe mouth infections and will need dental implants in order to chew again. We are close to being thrown out of the airport hotel we were forced to stay in after losing the apartment we were staying in. I also am not well and have several health issues that make this entire situation all the more difficult.
She will lose her one last chance to have the life altering surgery she has waited years for. There is much more to this story and I thank you for reading this much so far, but all I want is to be able to put this behind us and have a chance at some peace in life and would be forever and eternally grateful for any support we may be Blessed enough to recieve. She is an only child, it has only been us. I lost my husband and her father to juvenile Diabetes. IWe have tried to make this happen for so long and would be lost if we miss the chance now. Please consider us in any way you can and I appreciate and thank you in advance. I have received many Blessings in my life and I am aware others suffer much more than this...if I could take this away from my daughter and give it to myself I would, as I cannot watch her suffer any longer. Thank you again for your time and consideration with all my heart and soul.