Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
This campaign is about the awareness of this rare disease and supporting Haemophilia patients by fundraising their treatment.
Together with a team of Sobi colleagues, I will be cycling about 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to raise money for the European Haemophilia Consortium (EHC).