Scott and the Dukeries 40 mile Ultra.
Scott Clark is the daddy of Maisie who is in the same class and is friends with Livvy Holden at her School.
Tammy Clark - "Livvy is in the same class as our little girl maisie. Maisie told Scott about Livvy and he said he had to do what he could to help. Livvy's story has touched us both and we will help in any way we can."
Scott has kindly volunteered to run the Dukeries Ultra 40 Mile race on Sunday 17th May 2015 in support of Livvy and to help raise awareness of Livvy's Condition 'Xeroderma Pigmentosum' (XP) and raise funds for her ongoing care and to help make her environement safe from damaging Ultra Violet rays. Last year Scott raised £150 for help the heroes doing tough mudder which is a 12 mile obstacle course. Scott has been training in the peak district and sherwood forest in preparation for this gruelling 40 mile challenge which starts in walesby goes through sherwood forest, on to Cuckney to Cresswell back through clumber and then back to walesby. See the link attached to the route map.
Livvy and Xeroderma Pigmentsosum (XP)
Scott has kindly offered to support Livvy, who was diagnosed with XP in August 2014 at age 5, her condition means that her body is unable to repair UV damage to the DNA in her skin, when her body attempts to repair the damage her skin cells mutate and cancers form. Livvy is over 1000 times more likely to get skin cancers during her lifetime, so far she's had 8 tumours on her face and has already undergone four surgeries to remove these cancers. In some countries unprotected life expectancy of XP rarely exceeds 40 years. All exposure to UV must therefore be strictly prevented, the strongest UV radiation is from the sun, however artificial lights can give off UV too so it is a constant battle to ensure her environment is safe and she is always protected.
Our aim is to raise enough funds to contribute to adapting her school into a UV safe environment by placing UV protective window film on all windows, placing protective sleeves over the harmful strip lights and by contributing towards an outdoor shady area to protect her from the most harmful of the suns rays. We want Livvy to be able to move around her school freely without the restrictions of her protective gloves and mask and to be able to eat her school lunch in the hall with the other children rather than by herself in her classroom. We would also like to be able to provide Livvy with more high UPF protective clothing which will also help to further protect her skin against the harmful UV rays, however these are very expensive. Livvy and her family are overwhelmed by the kind support of Scott and his family and wish him every success in his Dukeries 40 Mile Ultra.