Save Toleen from Dying

We got married in 2002 and had our two kids, Rayan in 2003 and Tuleen in 2006. Both Rayan and Tuleen were very healthy, until Rayan was 4 years old. He started getting sick, and it appeared to us that the hemoglobin was with a very low rate in his blood. He started having cramps in which we couldn’t explain. Doctors had a different diagnosis for Rayan every time we visited the hospital. The only thing that was done on regular basis was the Intravenous fluids and blood he got, and then we were always sent home. Nobody expected he had a genetic disease. Tuleen was only two years old and I used to leave her with her aunts and relatives, in order for me to be able to take care of Rayan. The doctors questioned that he could have had cancer and asked for a biopsy. We did the biopsy at King Hussein’s Cancer Foundation and while waiting for the results he relapsed. He was unable to walk and had fluids coming out of his mouth and nose. I still remember the night he crawled to my bed at night to wake me up and tell me that he couldn’t breathe. We rushed to the hospital, he was crying with agony, and none of us nor the doctors knew what was wrong with him. He was shouting while the Intravenous fluids were attached to his body. After he got the fluids, we took him home, but he had more severe cramps, and he lost the ability to concentrate his vision and see. We head to the ER, they told us that he was just pretending. Despite the fact that he ripped my clothes while holding him out of agony. A nurse noticed that his tommy’s size was not normal, and asked us to have his tommy scanned. They had his tommy scanned and found out that he had a complete kidney failure, his kidneys had already melted. They had him checked into the ICU immediately, where the percentage of Urea (poison) was 500 in his body. The doctors said that he should have been dead. He was so cramped and shouting that they had to attach the tubes to his body without anesthesia. When the doctor came and