Rayyan, Our Strong Hero With A Rare Disorder

Please pray for my love, my dear nephew.

Our boy, 7 years old this year, has Klippel Tranaunay Syndrome with possible venous malformation in the right sacral nueral foramina with extension to rectal wall with intermittent per rectal bleed(resulting in anemia) since ten months old. He requires colonoscopy, band ligation, sclerotherpy. He has gone through surgeries, bloods transfusions and iron transfusions. This surgeries are as recent as 9th and 16th of July.

Currently, there is no cure for this rare disorder and he has to go through operation after operation just to reduce the pain. We are now awaiting a major operation that involves high risk.A few of the risks involve is hardening of the lungs, foot drop in the right leg(not able to walk properly anymore), skin burns, thromboembolism, and nerve injury. The right leg has abnormal veins growing and it has gone up to his pelvic area and they will need to 'burn' off the veins asap. Also, the lumps on the right legs is getting bigger. He's also not allowed any physical activities.