Raising Rynah
Fundraising campaign by
Jolene du Plessis
-
US$940.00Donated So Far
Campaign Story
This is Rynah. She was born 30 Oct 2016. She loves dancing, singing and playing...just like any other toddler. She is a strong-willed little girl. In March 2018, we found out she has Cystic Fibrosis.
noun
- a hereditary disorder affecting the exocrine glands. It causes the production of abnormally thick mucus, leading to the blockage of the pancreatic ducts, intestines, and bronchi and often resulting in respiratory infection.
- Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
- Patients with Cystic Fibrosis have an unpredictable course, but all have a reduced life expectancy.
We have decided that this will not define our little girl. In fact, we believe this will make us more aware of the 'now' and make sure we all live each day to the fullest. We trust in God's plans for her life and that He holds her in His hands.
We want to make sure Rynah has access to latest treatments and medicine, and we are not ignorant of the impact this diagnosis will have on our family - the emotional, physical and ESPECIALLY the financial impact.
And so we are reaching out to our friends, family and their friends to support us in 'Raising Rynah' as a happy, healthy little girl, so that she can live in hope, without restraint, with Cystic Fibrosis. All funds will go into her account and will carry us in times where we cannot afford her treatments or in cases where equipment will improve her quality of life. We also believe that the latest medication (Symdeko and the triple combo by Vertex - not in SA yet and not available for her age) could offer her a longer, healthier life - but at current costs this is not an option (looking at R150 000 per month).We refuse to accept this and therefore we are starting to raise funds for this, along with general ongoing expenses today. Any amount - big or small - will help Rynah live a full life.
Funds can also be deposited into the following banking account:
FNB cheque account:
JJ du Plessis
Account: 62754915373
Branch Code: 250 655
Fundraising Team
- Jolene du Plessis
- Campaign Owner
- Cobus Du Plessis
- Funds manager
Donors
- Andrie
- Donated on Jun 23, 2018
- Davide Tarantello
- Donated on Jun 20, 2018
- Anonymous
- Donated on Apr 10, 2018
How time has flown
Update posted by Jolene du Plessis at 07:09 amWe haven't updated in so long! Life has been a whirlwind. I hope all who are here have also followed us on my blog https://piecesofjolene.wordpress.com/ and on Rynah's Facebook page (www.facebook.com/teamrynah) We are well. We had many many challenges that I did not add here. Some of you may know. . . . .
There is life after a CF diagnosis
Update posted by Jolene du Plessis at 12:55 amThis update has been long overdue!Firstly, we would like to thank each and every person who has backed our campaign. We cannot begin to explain how thankful we are! Friends from near and far, as well as backers we don't know - making a difference in our beautiful little girl's. . . . .
Donors & Comments
- Andrie
- Donated on Jun 23, 2018
- Davide Tarantello
- Donated on Jun 20, 2018
- Anonymous
- Donated on Apr 10, 2018
- Anonymous
- Donated on Mar 28, 2018
Sending love and prayers. Love Gino and Tiziana xxx
- Kerneels Brockman
- Donated on Mar 24, 2018
- Chantelle Arpesella
- Donated on Mar 24, 2018
- Daniela Tarantello
- Donated on Mar 24, 2018
- Hilton Ruch
- Donated on Mar 23, 2018
- Henrietta Atkinson
- Donated on Mar 23, 2018
Sending our best wishes to your family from London xxx
- Anonymous
- Donated on Mar 23, 2018
Hope this little bit helps girlfriend. Good luck.
Followers
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