This is Rynah. She was born 30 Oct 2016. She loves dancing, singing and playing...just like any other toddler. She is a strong-willed little girl. In March 2018, we found out she has Cystic Fibrosis.
- a hereditary disorder affecting the exocrine glands. It causes the production of abnormally thick mucus, leading to the blockage of the pancreatic ducts, intestines, and bronchi and often resulting in respiratory infection.
- Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
- Patients with Cystic Fibrosis have an unpredictable course, but all have a reduced life expectancy.
We have decided that this will not define our little girl. In fact, we believe this will make us more aware of the 'now' and make sure we all live each day to the fullest. We trust in God's plans for her life and that He holds her in His hands.
We want to make sure Rynah has access to latest treatments and medicine, and we are not ignorant of the impact this diagnosis will have on our family - the emotional, physical and ESPECIALLY the financial impact.
And so we are reaching out to our friends, family and their friends to support us in 'Raising Rynah' as a happy, healthy little girl, so that she can live in hope, without restraint, with Cystic Fibrosis. All funds will go into her account and will carry us in times where we cannot afford her treatments or in cases where equipment will improve her quality of life. We also believe that the latest medication (Symdeko and the triple combo by Vertex - not in SA yet and not available for her age) could offer her a longer, healthier life - but at current costs this is not an option (looking at R150 000 per month).We refuse to accept this and therefore we are starting to raise funds for this, along with general ongoing expenses today. Any amount - big or small - will help Rynah live a full life.
Funds can also be deposited into the following banking account:
FNB cheque account:
JJ du Plessis
Branch Code: 250 655