Our little girl Matilda’s battle with rare Batten Disease
Fundraising campaign by
Elizabeth Sanson
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AU$2,569.00Donated So Far
Our daughter was born in 2011, seemingly a healthy, happy baby. She developed normally, becoming a toddler and little girl who was happy, full of life, always wanting to help out and do what she could see others doing. She just loved people, would go with the flow and wanting to comfort anyone who was upset. She has always been determined, giving everything a try, and that has not changed, such a little battler!
In June 2015, just before Matilda's 4th birthday, she was diagnosed with Batten Disease, (CLN2 - Late-infantile) we were given the devastating news that it was a rare genetic neuro-degenerative disorder in which she would suffer from increasing seizures, losing her abilities to walk, talk, eat, see etc and with a life expectancy of between 6-12 years old. There is currently no cure and any treatments are only in the clinical trial stages.
Life for our family has not been the same since. We've had to close the business and both become full time carers.
We would appreciate any financial support to give Matilda the best quality of life possible. To have all the equipment needed to give her daily care, make her comfortable and to get her out of the house. To give her experiences and find things for her enjoyment and to make her smile. All donations will be used soley for this purpose.
Follow by liking her page on Facebook: https://www.facebook.com/matildasanson/
Organizer
- Elizabeth Sanson
Donors
- Kirsten Lewkowicz
- Donated on Jan 20, 2021
- Anonymous
- Donated on Nov 01, 2020
- Mollie-rose
- Donated on Sep 06, 2019
No updates for this campaign just yet
Donors & Comments
- Kirsten Lewkowicz
- Donated on Jan 20, 2021
- Anonymous
- Donated on Nov 01, 2020
- Mollie-rose
- Donated on Sep 06, 2019
- Guest
- Donated on Sep 01, 2019
Happy birthday Matilda
- Christian Sandbrook
- Donated on Aug 27, 2019
- Hannah Hussain
- Donated on Sep 05, 2018
- Anonymous
- Donated on Mar 04, 2018
Your family is so strong and resilient, I cannot imagine the hardships and struggles you are all going through. My love and prayers are with you, I pray you are all given even more strength and patience and that Matilda stays happy xxx
- Jamie Dixon
- Donated on Mar 16, 2017
- Peta Murchison
- Donated on Jan 26, 2017
Sending our love and best wishes, Mia, Toby, Hamish & Peta
- Olivia Downey
- Donated on Jan 19, 2017