My baby boy was diagnosed with a rare form of congenital heart disease a month before his delivery date. He has a Double Outlet Right Ventricle, Ventricular Septal Defect, and Mild Pulmonary Stenosis.. Although this was very overwhelming we have put it in Gods hands as we try our hardest to have faith that everything happens for a reason.. He will undergo open heart surgery at 4 months old.. which is 2 months away. I have had to stop working to take care of him and my husbands lack of hours at work due to hospital stays and doctor visits makes it very hard. We are asking for help as we take on this new chapter in our lives.