My 4 year old son Suffering from Red Skin Syndrome

Update posted by Irhamna Taib On Oct 08, 2017

I am feeling down writing this. We tried Taipei TCM treatment that we consulted with in KL for Ihsan. First week his skin lesions improved. But then second week, he had flu, then we continued again the treatment (herbal bath, spray & cream) and added the oral herbs after he recovered from the flu.

Then it started going downhill again. After the 3rd week on TCM treatment, the herb bath supply had finished and since we were advised to weaned off the treatment slowly, only applied spray and cream the next few days. Each day, only one cream application. The antibacterial spray is good as it helps to relief some of his itch. However everytime i stopped applying the cream for about 2 days, new rashes will appear on parts of his body, limbs or face.

We did liaise with the Chinese physician via calls and text messages. I started to panic when his whole body and face had folliculitis (tiny itchy bumps and some had liquid when popped). Physician advised that it could be his body detoxing again. I do not know if I made the right choice for him to start this treatment though. If only we could afford to let him be monitored by Dr Sato for a few days in the hospital but that could never happen.

I have asked various people on various other blood tests to be done, if he had MTHFR gene mutation, where to get tests like the hair HTMA or urine OAT tests done. Too much information for us parents to absorb, too many things to try to heal him quickly, too much supplements products etc given to him. He had gone through many rounds of healing crisis (too high detoxification process that leads to bad flares or terrible bouts of itch). I cannot see my son suffering continuously. I fee like I have failed my duties.

Below are the photos of his current skin condition.I have emailed Dr Kenji Sato again and hopefully his kind soul will give me further advice.


Here are photos of his folliculitis he had after weaning off the herbal bath and cream.



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Update posted by Irhamna Taib On Oct 08, 2017

I am feeling down writing this. We tried Taipei TCM treatment that we consulted with in KL for Ihsan. First week his skin lesions improved. But then second week, he had flu, then we continued again the treatment (herbal bath, spray & cream) and added the oral herbs after he recovered from the flu.

Then it started going downhill again. After the 3rd week on TCM treatment, the herb bath supply had finished and since we were advised to weaned off the treatment slowly, only applied spray and cream the next few days. Each day, only one cream application. The antibacterial spray is good as it helps to relief some of his itch. However everytime i stopped applying the cream for about 2 days, new rashes will appear on parts of his body, limbs or face.

We did liaise with the Chinese physician via calls and text messages. I started to panic when his whole body and face had folliculitis (tiny itchy bumps and some had liquid when popped). Physician advised that it could be his body detoxing again. I do not know if I made the right choice for him to start this treatment though. If only we could afford to let him be monitored by Dr Sato for a few days in the hospital but that could never happen.

I have asked various people on various other blood tests to be done, if he had MTHFR gene mutation, where to get tests like the hair HTMA or urine OAT tests done. Too much information for us parents to absorb, too many things to try to heal him quickly, too much supplements products etc given to him. He had gone through many rounds of healing crisis (too high detoxification process that leads to bad flares or terrible bouts of itch). I cannot see my son suffering continuously. I fee like I have failed my duties.

Below are the photos of his current skin condition.I have emailed Dr Kenji Sato again and hopefully his kind soul will give me further advice.


Here are photos of his folliculitis he had after weaning off the herbal bath and cream.



Add a Comment

Update posted by Irhamna Taib On Sep 10, 2017

We have visited the TCM Taipei in KL recently. Ihsan has started on the treatment for 3 days. So far we can see some improvements on his skin. We can only get 2 weeks supply of herbs as the doctor wanted to see Ihsan again in November or December again. We will order another few weeks supply and get the herbs mailed to us in future if needed.

The tcm team is great as they even have a contact number where I can ask questions via WhatsApp. I am hoping that this treatment will work on Ihsan. He was even prescribed oral herbs for his overall immune health and asthma but we have not started on that yet as I prefer to try one thing at a time first to prevent his body going through healing crisis again. Thank you to all the mommies in the FB eczema group who have recommended this TCM.

From what I understand, the body has to be fully detoxes of chemicals like steroids before trying out the treatment. It is safe to use on Ihsan now since he has been detoxing for 2 years now.


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Update posted by Irhamna Taib On Aug 18, 2017

Finally the results from the lab test is out. My friend had sent the Tcm cream from TCM Taipei from Kuala Lumpur to a lab recommended by HSA to test for any steroids present in the cream. Good news the cream does not contain any steroids. The proper treatment was to bathe the patient in herbs, body spray and apply the cream. We have been giving Ihsan supplements daily. After many trials and error, we found out certain supplements does not work for him. So at this point of time, the constant monthly supply is for high quality probiotics, pure turmeric, pure black seed oil and olivaforte. It took many months to see slight improvements as well.

Dr Sato has not replied to my last email and we might not be going to Osaka again soon as the last advice given by Dr Sato was that he can only prescribe the antihistamines again and ihsan might have to be admitted in the hospital if we want constant monitoring of his condition. Which I think is not possible due to monetary and timing issues.

So we are planning and considering bringing Ihsan to TCM Taipei in KL next month. To try out the herbal bath n cream/spray treatment. Hopefully we can wean off Treatment within 2 weeks or so.

We are really grateful with the constant support that the kind contributors have given. We are trying our very best to heal Ihsan as soon as possible too as he will hit the 2 year mark going through this Topical steroid withdrawal in September this year.

Your prayers are deeply appreciated as well.

Below are photos of ihsan's current condition.


.



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Update posted by Irhamna Taib On Aug 18, 2017

Finally the results from the lab test is out. My friend had sent the Tcm cream from TCM Taipei from Kuala Lumpur to a lab recommended by HSA to test for any steroids present in the cream. Good news the cream does not contain any steroids. The proper treatment was to bathe the patient in herbs, body spray and apply the cream. We have been giving Ihsan supplements daily. After many trials and error, we found out certain supplements does not work for him. So at this point of time, the constant monthly supply is for high quality probiotics, pure turmeric, pure black seed oil and olivaforte. It took many months to see slight improvements as well.

Dr Sato has not replied to my last email and we might not be going to Osaka again soon as the last advice given by Dr Sato was that he can only prescribe the antihistamines again and ihsan might have to be admitted in the hospital if we want constant monitoring of his condition. Which I think is not possible due to monetary and timing issues.

So we are planning and considering bringing Ihsan to TCM Taipei in KL next month. To try out the herbal bath n cream/spray treatment. Hopefully we can wean off Treatment within 2 weeks or so.

We are really grateful with the constant support that the kind contributors have given. We are trying our very best to heal Ihsan as soon as possible too as he will hit the 2 year mark going through this Topical steroid withdrawal in September this year.

Your prayers are deeply appreciated as well.

Below are photos of ihsan's current condition.


.



Add a Comment

Update posted by Irhamna Taib On Aug 18, 2017

Finally the results from the lab test is out. My friend had sent the Tcm cream from TCM Taipei from Kuala Lumpur to a lab recommended by HSA to test for any steroids present in the cream. Good news the cream does not contain any steroids. The proper treatment was to bathe the patient in herbs, body spray and apply the cream. We have been giving Ihsan supplements daily. After many trials and error, we found out certain supplements does not work for him. So at this point of time, the constant monthly supply is for high quality probiotics, pure turmeric, pure black seed oil and olivaforte. It took many months to see slight improvements as well.

Dr Sato has not replied to my last email and we might not be going to Osaka again soon as the last advice given by Dr Sato was that he can only prescribe the antihistamines again and ihsan might have to be admitted in the hospital if we want constant monitoring of his condition. Which I think is not possible due to monetary and timing issues.

So we are planning and considering bringing Ihsan to TCM Taipei in KL next month. To try out the herbal bath n cream/spray treatment. Hopefully we can wean off Treatment within 2 weeks or so.

We are really grateful with the constant support that the kind contributors have given. We are trying our very best to heal Ihsan as soon as possible too as he will hit the 2 year mark going through this Topical steroid withdrawal in September this year.

Your prayers are deeply appreciated as well.

Below are photos of ihsan's current condition.


.



Add a Comment

Update posted by Irhamna Taib On Aug 18, 2017

Finally the results from the lab test is out. My friend had sent the Tcm cream from TCM Taipei from Kuala Lumpur to a lab recommended by HSA to test for any steroids present in the cream. Good news the cream does not contain any steroids. The proper treatment was to bathe the patient in herbs, body spray and apply the cream. We have been giving Ihsan supplements daily. After many trials and error, we found out certain supplements does not work for him. So at this point of time, the constant monthly supply is for high quality probiotics, pure turmeric, pure black seed oil and olivaforte. It took many months to see slight improvements as well.

Dr Sato has not replied to my last email and we might not be going to Osaka again soon as the last advice given by Dr Sato was that he can only prescribe the antihistamines again and ihsan might have to be admitted in the hospital if we want constant monitoring of his condition. Which I think is not possible due to monetary and timing issues.

So we are planning and considering bringing Ihsan to TCM Taipei in KL next month. To try out the herbal bath n cream/spray treatment. Hopefully we can wean off Treatment within 2 weeks or so.

We are really grateful with the constant support that the kind contributors have given. We are trying our very best to heal Ihsan as soon as possible too as he will hit the 2 year mark going through this Topical steroid withdrawal in September this year.

Your prayers are deeply appreciated as well.

Below are photos of ihsan's current condition.


.



Add a Comment

Update posted by Irhamna Taib On Jul 21, 2017

We have been following Dr Sato's method since March minimal to no moisturizers on his skin. The stubborn oozing Patches on the back of his thighs are making me very worried. They are spreading and I've been controlling the infection with pure turmeric juice only or nigella sativa oil. Still waiting for positive updates on the treatment results by another fellow mommy as they consulted the Taipei TCM in Kuala Lumpur recently.

Below are latest photos of my boys

Add a Comment

Update posted by Irhamna Taib On Jul 21, 2017

We have been following Dr Sato's method since March minimal to no moisturizers on his skin. The stubborn oozing Patches on the back of his thighs are making me very worried. They are spreading and I've been controlling the infection with pure turmeric juice only or nigella sativa oil. Still waiting for positive updates on the treatment results by another fellow mommy as they consulted the Taipei TCM in Kuala Lumpur recently.

Below are latest photos of my boys

Add a Comment

Update posted by Irhamna Taib On Jul 21, 2017

We have been following Dr Sato's method since March minimal to no moisturizers on his skin. The stubborn oozing Patches on the back of his thighs are making me very worried. They are spreading and I've been controlling the infection with pure turmeric juice only or nigella sativa oil. Still waiting for positive updates on the treatment results by another fellow mommy as they consulted the Taipei TCM in Kuala Lumpur recently.

Below are latest photos of my boys

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