Hello, my name is Michelle. I'm 35 years old and have already been diagnosed with six rare medical conditions. I find this very difficult to do, because I like to keep my private life private...I don't want people to judge me based on my medical conditions, or think I can't be a very productive member of society. All of this happened fairly recently, within the last 5 to 7 years ,one after the other, and it's taken a great toll on my body. I consider myself fortunate, because at least two of my conditions can lead to paralysis or death, but they have caused me significant strife. One of the major adverse side effects of my conditions is that my teeth are literally deteriorating from the inside out...every one of them. This has led to significant bone loss, multiple infections, tooth loss, speech changes, extreme self consciousness, inability to eat, and lots of money spent on unnecessary procedures that fail within months of receiving them; money I don't have.
I just recently underwent my latest surgery, heart surgery for a very rare cardiac disease called brugada syndrome, a condition that can cause sudden death...something that they speculate could've been caused or "turned on" by my mouth ailments. Before that, I've had major brain surgery, back surgery, cervical cancer surgery, and endured the day to day challenges of having multiple rare diseases that effect my whole body, and specifically my teeth.
Throughout everything, I've kept my spirits high, and strive to become better than I was yesterday. Most of my conditions can be hid from the general public, which I make a point to do, but having such advanced tooth deterioration has made me become extremely self conscious, and in constant pain. I'm an ER RN of 10 years who now works in the field of aesthetics and wellness, so I work up close and personal with people all day. My job is to make people healthy and beautiful, and I'm ashamed to smile with my teeth showing because of how they look. Everyday I wake up to a new problem; broken teeth, infections, broken crowns and bridges, severe jaw pain, headaches, and extreme self consciousness. My jaw is out of alignment, I've developed a lisp, and have severe TMJ complications. I am an extrovert by nature, but in the last two years where my teeth have undergone a major decline, I've become more introverted and embarrassed.
I've visited many dentists, endodontists, cosmetic dentists, periodontists, etc. The prevailing opinion is that my teeth are so far gone, I need them all extracted and have a full mouth restoration to prevent any further bone loss, or possible secondary diseases or conditions directly related to the condition of my teeth and gums.
Sadly, this procedure will cost me $50,000, a sum that it far too high for me to afford. Even though I have many medical conditions, I work full time and always try to keep positive...but that is getting harder and harder by the day. I am also financially responsible for my ill parents, so any money I make goes to their care.
I'm a very proud person, so this is extremely awkward and humbling to ask for help with anything, much less money. However I am desperate for relief, some good fortune, and a new lease on life.
So here I am asking for help, and putting myself out there in hopes I can be the blessed recipient of all of you generous people out there.
Thank you so much for taking the time to read this, and I am eternally grateful for any help I may receive.
With all my everlasting gratitude,
*profile picture was taken a couple years ago, before my mouth situation greatly deteriorated.