luis living life
Fundraising campaign by
gembo1985
-
£385.00raised of £5,000.00 goal goal
Campaign Story
Luis was born with a chromosome 1p36 deletion (Google it).
For luis this means he spent the first years in and out of hospital, He has holes in heart, he eats like a horse but unfortunately for him its not enough so he has a gastrostomy (tube in his tummy to feed him). Luis has gastric reflux too, with other bits and bobs.
Developmentally luis now 7 and a half he can bum shuffle like lightning, stand with support for a few minutes if you are good a distraction )).
Luis really struggles with communication most he understands far more than youd think but he is more or less non-verbal so we get lots of behaviour problems.
L
uis loves outdoors best but unfortunately its not inexpensive or always practical. So we are looking into getting him a specialist bike (1500) a specialally made swing (1000) a covered soft play area for the garden too.
Its ridiculous the amount of money these things cost, a typical child could get this stuff for 100 pound so why not luis
Im also hoping to organise a fundraising event in the summer
Fonate a penny or a pound or two even anonymous if you don't wish the world to know.
Thank you very much let luis have a fun filled life )
Organizer
- gembo1985
Donors
- Jude's nanny Trish
- Donated on Jul 02, 2013
Hope your fundraising goes well and you get what's needed for Luis
- Sam's Mom
- Donated on Jul 02, 2013
Keep plugging on Gemma, you will get there in the end. Have you done a carboot, that brings some cash in for your unwanted items
No updates for this campaign just yet
Donors & Comments
- Bravissimo Solihull
- Donated on Jul 12, 2013
Good luck on reaching your fundraising target. With love from everyone at Bravissimo Solihull x
- Jude's nanny Trish
- Donated on Jul 02, 2013
Hope your fundraising goes well and you get what's needed for Luis
- Sam's Mom
- Donated on Jul 02, 2013
Keep plugging on Gemma, you will get there in the end. Have you done a carboot, that brings some cash in for your unwanted items
- Ranjit, Pinda and Arjan
- Donated on Jun 01, 2013
- David Vickers
- Donated on May 31, 2013
I hope you achieve your goal with out too much delay.
- Tina
- Donated on May 31, 2013
- Tajinderpaal balbir singh
- Donated on May 30, 2013
- Rachael Boswell
- Donated on May 29, 2013
- Kieren
- Donated on May 28, 2013
From a friend of Ian Marrey. Good luck with the fundraising x
- Jude Marrey
- Donated on May 15, 2013
Good luck on reaching your fundraising target. With love from everyone at Bravissimo Solihull x