I hope you find it in your heart to read.
Here is my story:
We are parents of 2 wonderful kids. 1 is our 9 year old son Wayne and 2 is our 7 year old daughter Kaylene.
In 2014 our daughter Kaylene was diagnosed with a rare kidney desease called Nephrotic Syndrome. What this means is, her body does not withold proteins etc. She urinates all that is needed for the kidneys to fuction out and therefor only retain water.
Unfortuanately our medical aid does not cover all expenses and we have to pay some of her treatment from our pocket. And therefore we have to look the community in the eyes to survive as a family.
She is constantly in and out of hospital and also underwent a kidney biopsy. Her first 5 relapses consisted out of the same treatment, wich was 9 prednisone steroid tablets, to help the kidneys function. 1 lasix water tablet, to reduce the water retention. one alpha to replace salt, so that the muscles wont pull stiff. Kaylene has also been placed on a permanent low protein diet. Must see her Nephrologist once a month, urine and blood tests every second week. Heart and kidney sonars monthly.
The Nephrologist calls each treatment "buying time". Kaylene started to drop to a dangerously low blood preasure and a high infection count. And since she has no umine system her body cannot fight this.
Her next treatment will consist of Endoxan injections, used to treat both kidneys and cancer. Medical aid only covers 30% of this injection.
Without this treatment we will loose her... sadly we cannot afford this.
This is taking a huge toll on our family.
Over in South Africa a Non Profit Company was created for her, but people either seem inhuman or just simply dont care.
So an American Army Veteran (Vernon) Kirk Hinote helped me create a fundraising page for Kaylene to help raise funds for her continued treatments. Without these treatments she could pass away.
A facebook GROUP was also created in support of Kaylene. On her facebook page is all relevant information, as well as evidence and her South African Non Profit Company and banking details is also available. Her facebook group is called KAYLENE CREWE NEPHROTIC SYNDROME SUPPORT GROUP.
On Youtube there is also a video available about her story, called KAYLENE CREWE NEPHROTIC SYNDROME SUPPORT.
I am merely asking for help to save our daughter.
Please, can you find it in your heart to help in some way.