Journey of Hope for Zac Bruwer

Update posted by Helene Bouchard On Aug 21, 2015

Zacs story is quite sad and every time I share it with someone it reminds me of how precious life is and how we sometimes take it for granted!
Zac was born on the 25 May in 2009, he was a perfect little boy, healthy and full of life. Shortly after celebrating his 1st birthday at 15 month old the worst thing happened to him, to us as a family!

On the 25th of August 2010 our driveway gate (500kg) fell on Zac?s tiny little body, crushing and suffocating him! I was not home at the time and he was being taken care of by his nanny!
I got terrible phone call from her screaming and I rushed home! When we drove up our street I noticed our gate was lying on the driveway and I wondered what blue teddy was lying under the gate and then it hit me it was my baby, my little Zac!
I jumped out the car and with strength that I don?t know where I got it from threw the gate off him, his body was cold, blue and he wasn?t breathing!
I started CPR straight away and we rushed him to hospital. The Doctors administered two shots of adrenalin and he was resuscitated.
He was put on life support and we didn?t know if he was going to pull through! They declared him brain dead and wanted to switch life support off, I refused and insisted on another EEG in the morning. The second EEG showed activity, very very little, but it was enough for me!
Three days later his organs started to fail and the docors told us to prepare ourselves as he would not pull through, but my little angel did.
We were transferred a week later to Cape Town and admitted to Constantia Medi Clinic, we stayed in hospital for 4 months I never left his side, I never went outside, I didn?t move from his bed side, I was waiting for him to wake up, to smile or even cry but it never happened!
I did hyperbaric oxygen treatment with him and waited and waited for his beautiful smile, nothing! He just lay there staring straight ahead with no emotion or feeling, he literally felt nothing no pain, he was operated on and didn?t even cry!

Five months later we came home and I had to bring Zac to meet his 2 brothers who were convinced he was ok, they took one look at him and said confused,? he looks the same? oh how my heart broke, knowing he will never be the same little Zac they kissed goodbye 5 months ago when they went to school!
My oldest son Damon said as soon as he can see again he will be fine, and that?s what they waiting for! Kyle my youngest son, is constantly trying to make Zac laugh, and often looks at photos of Zac before his accident trying to understand what is wrong!
That is my driving force for wanting to heal my Zac so that he can do something as simple as smile!!

Zac is spastic Quadriplegic, he is cerebal palsy he is cognitively blind and suffers from severe epilepsy BUT he is alive and a few years ago he was in a full vegetative state with no awareness able to do nothing not even swallow his own spit, he has a gastroscopic tube in his tummy where he can get fed directly into his stomach.
One of the side effect was he started getting seizures/epilepsy and with that he vomited all the time sometimes 25 times a day. Medication was having very little effect on him everything was so severe and he was too small for higher doses. So I started the Ketogenic diet and it stopped the vomiting!

We have raised funds three times and I have taken him to China twice since his accident to have stem cell transplanted, it has been a success! The chances of it working where not very good but we took a chance and it was worth it! The third time we took him to USA and we did the suit therapy!

Zacs is still spastic quadriplegic but can now move his legs and arms and I have almost got him to sit unsupported on his own. He has so much more awareness and turns his head to look around especially when he hears his brothers. He can cry and make baby sounds goo goo ga words every now and then! His expressions can show me when he is upset sore or happy!
Zac can see a bit now, he can distinguish between light and dark and shadows and sometimes it looks like he is focusing on things! I believe his sight will return with therapy!
Zac also started eating and drinking a bottle, the suck swallow and breath motion is very difficult as it requires a lot of coordination but he did it, sadly he had a epileptic relapse due to me stopping his ketogenic diet and has temporarily lost that ability, he has also started vomiting again but I am getting that under control. He did once he will do it again!
(Ketogenic milk is too expensive and I could no longer afford it)

Zac is a amazing little boy and everyone who comes into contact with him leave feeling a tremendous amount of love because that is what he is pure unconditional love. All I ever want for my son is a chance a chance at rehab, proper diet, proper care, so not only to make my life easier but most important to make his life and quality of life the best possible!!

With all my heart I thank you,

Lots of hugs, Lorena & Zac



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I miss all of you! I'll always remember how much love I felt at your home and how special you all are. ❤️

Kim Tauriello

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Anonymous

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Wishing your family love and happiness.

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Sending our faith, love and prayers! xoxo Liza and Dakotah

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