Help Us Save Baby Andrian’s Life

  • €4,193.00
    raised of €500,000.00 goal
0% Funded
78 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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Baby Andrian was born in our big family 1year and 8 months ago. He is our fourth child. He seemed to be completely healthy at the beginning until he turned 4 months when we noticed that he still couldn’t roll over. His muscles became weaker and weaker… It took us another 5 months before the doctors diagnosed Andrian with Spinal Muscular Atrophy (SMA) Type 1 that is caused by a mutation in the survival motor neuron gene 1 (SMN1).

Back then the doctors told us that this most probably means our baby wouldn’t survive longer than the age of 2 because this disease will slowly impair his ability to breath…

We couldn’t accept this and started our own research. We found out that this type of SMA CAN BE CURED by medicine called Zolgensma. This medicine was created and registered in the USA in May 2019. It’s a one-time treatment that the baby must receive before he turns 2 years old. Detailed information about this medicine can be found here: https://www.zolgensma.com/

We also learned that this medicine is not financed either by the insurance companies in Russia or the government whilst being the most expensive medicine in the world. The cost of Zolgensma is 2,2M USD which is approximately 1,9M EUR. Luckily, nowadays Andrian can receive this treatment in Russia.

My name is Ekaterina Poleshuk. I’m a wife of Priest of the Russian Orthodox Church in a small village near Zelenograd. For us, a family with 4 children it’s impossible to be able to pay for this treatment. That’s why we decided to start a fundraising campaign to save our baby’s life.

I am kindly asking you to support our baby boy Andrian in being able to be cured with Zolgensma.

We are very thankful to everyone for every donation, how small that may be, you make to save our baby’s life!


Yours sincerely,
Mum and dad of Andrian Poleshuk - Ekaterina and Dmitry Poleshuk

Organizer

Donors

  • Diana Suvak
  • Donated on May 26, 2020
  • May God protect little Andrian and grant him health. We pray for him and for his entire family.

€20.00
  • Anonymous
  • Donated on May 24, 2020
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  • Anonymous
  • Donated on May 24, 2020
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Donors & Comments

78 donors
  • Diana Suvak
  • Donated on May 26, 2020
  • May God protect little Andrian and grant him health. We pray for him and for his entire family.

€20.00
  • Anonymous
  • Donated on May 24, 2020
Amount Hidden
  • Anonymous
  • Donated on May 24, 2020
Amount Hidden
  • Anonymous
  • Donated on May 24, 2020
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  • Anonymous
  • Donated on May 22, 2020
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  • Anonymous
  • Donated on May 21, 2020
  • God bless you and may he save Andrian if that is his will.

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  • Guest
  • Donated on May 21, 2020
€30.00
  • Guest
  • Donated on May 21, 2020
  • Христос Воскресе! Желаем скорейшего здравия Вашему малышу!

€500.00
  • Anonymous
  • Donated on May 21, 2020
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  • Anonymous
  • Donated on May 21, 2020
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Followers

20 followers
Diana Suvak
Adrian Liepelt
Helene Sorret
Irina Gorbatova
Iulia Donos
Matt Werle
Ekaterina Penkovskaya
Esmeralda Cubillo
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Inna Blyzna
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€4,193.00
raised of €500,000.00 goal
0% Funded
78 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities