Help Us Save Baby Andrian’s Life
Fundraising campaign by
Ekaterina Poleshuk
-
€4,193.00raised of €500,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Baby Andrian was born in our big family 1year and 8 months ago. He is
our fourth child. He seemed to be completely healthy at the beginning
until he turned 4 months when we noticed that he still couldn’t roll
over. His muscles became weaker and weaker… It took us another 5 months
before the doctors diagnosed Andrian with Spinal Muscular Atrophy (SMA)
Type 1 that is caused by a mutation in the survival motor neuron gene 1
(SMN1).
Back then the doctors told us that this most probably
means our baby wouldn’t survive longer than the age of 2 because this
disease will slowly impair his ability to breath…
We couldn’t
accept this and started our own research. We found out that this type of
SMA CAN BE CURED by medicine called Zolgensma. This medicine was
created and registered in the USA in May 2019. It’s a one-time treatment
that the baby must receive before he turns 2 years old. Detailed
information about this medicine can be found here:
https://www.zolgensma.com/
We
also learned that this medicine is not financed either by the insurance
companies in Russia or the government whilst being the most expensive
medicine in the world. The cost of Zolgensma is 2,2M USD which is
approximately 1,9M EUR. Luckily, nowadays Andrian can receive this
treatment in Russia.
My name is Ekaterina Poleshuk. I’m a wife
of Priest of the Russian Orthodox Church in a small village near
Zelenograd. For us, a family with 4 children it’s impossible to be able
to pay for this treatment. That’s why we decided to start a fundraising
campaign to save our baby’s life.
I am kindly asking you to support our baby boy Andrian in being able to be cured with Zolgensma.
We are very thankful to everyone for every donation, how small that may be, you make to save our baby’s life!
Yours sincerely,
Mum and dad of Andrian Poleshuk - Ekaterina and Dmitry Poleshuk
Organizer
- Ekaterina Poleshuk
- Campaign Owner
- Zelenograd, RU
No updates for this campaign just yet
Donors & Comments
- Diana Suvak
- Donated on May 26, 2020
May God protect little Andrian and grant him health. We pray for him and for his entire family.
- Anonymous
- Donated on May 24, 2020
- Anonymous
- Donated on May 24, 2020
- Anonymous
- Donated on May 24, 2020
- Anonymous
- Donated on May 22, 2020
- Anonymous
- Donated on May 21, 2020
God bless you and may he save Andrian if that is his will.
- Guest
- Donated on May 21, 2020
- Guest
- Donated on May 21, 2020
Христос Воскресе! Желаем скорейшего здравия Вашему малышу!
- Anonymous
- Donated on May 21, 2020
- Anonymous
- Donated on May 21, 2020
May God protect little Andrian and grant him health. We pray for him and for his entire family.