This handsome little guy is in need of your help as he has a few challenges:
-He has has a neurological degenerative disorder that is similar to or connected with Cystic Fibrosis. In short the mucus lining around the nerves in his brain is too thick and doctors believe it is thickening
-Severe food Allergies to many foods
-Only 20% Hearing in one ear, 0% in the other caused by the neurogloigal disorder and is starting to affect other areas as well
-He has renal pelvic dilatasis, when if not montitored proper could rupture
-On and off over 30 medications a day plus inhalers, 02 tank...etc
-He has 9 different specialists, from all over alberta who are working diligently for him and with their efforts and he has made great progress. This however requires a lot of travel and financial dedication as he has appointments weekly and is currently waiting for his next set of surgeries.
-Good news, Holland carries a drug that would help him, Bad news, it is in Holland and very expensive to get over here. His family is trying to do whatever it takes to save to get the medicine sent over here for their little 2 year boy.
He is making progress but a very high price. Please send a little his way, every little bit counts. Together we can make sure Tristan and his family is only battling his disorders and not the cost of them.