hien dang is our seven year old daughter who has never walked or talked. We need help paying for her therapy and medical expenses.
hien dang is such a cute little girl who we really love and want to have a normal life. When she was 8 months old I called her pediatrician because she wasn't sitting up yet, and my mother in law said she had never seen a kid try to sit with their legs all bent up that way. We had about 8 months of bliss before the therapy and Doctors visits started. She has had two brain MRI's two spinal tap's a muscle biopsy along with Botox injected in her legs and is collecting scares from all these procedures. Maya does not talk and it is really difficult to understand what she wants at times, she knows some sign language but most of the time just points, and when we can't understand what she needs she just cries. She wears special orthotic boots to help her place her feet correctly while she uses her gait trainer. We have been to Doctors in New Jersey, New York and Philadelphia to try to discover a diagnosis and we still do not have one. She has had years of Speech therapy, Physical therapy and Occupational therapy, even Aqua therapy and it seems she will need therapy for the rest of her life. As she grows her legs tighten which means more procedures to loosen them again. We have been told we can do a lot more with her by way of therapy and ground breaking medical advances in other countries, and it is all totally out of pocket. Right now we are struggling to find suitable care for Maya and those that are able to help take care for her want nearly three times the average rate, and as parents we are struggling to balance looking after Maya and being able to work to provide for her. Please help Maya have a bright and hopeful future if you can, any amount helps.