Hanna is 11 months old, lives in London and suffers with SMA type 1 (the worst one).
SMA or Spinal Muscular Atrophy is a genetic condition that affects muscles. Children with this condition have difficulties in holding their heads up, swallowing and breathing and in most cases, their respiratory system fails.
Gene therapy in the States is the only chance to save Hanna’s life. It costs over 2 million dollars! You can read about this medicine here Zolgensma and treatment. This price makes this medicine the world’s most expensive treatment and not readily available to the ordinary people. The only condition is that the child must be less than 2 years old so we do not have much time!
My question is: Is it really fair to put such a price on child's life??? I do not think it is, but big companies think otherwise. Can you imagine the pain in Hanna's parents hearts knowing there is a medicine which can save Hanna's life but the price is just too high??? That is really heartbreaking and very very sad. So please please I beg you do not scroll without any action, please help us to send her to USA.
This little Angel relies on people like us, people of good heart who are willing and wanting to help. I know with your help we can do it!
If you would like more information about how you can help email: [email protected] We must save Hanna!
All money raised will be donated to charity SiePomaga which Hanna is registered with. Please feel free to learn more about her story on www.siepomaga.pl/en/haneczka