Baby Aspen has been diagnosed with CDH (Congenital Diaphragmatic Hernia) and it requires long term NICU care. The doctors expect her to require 6 months, possibly more, in the Cincinnati Childrens NICU. She is currently awaiting corrective surgery. She is a true fighter and her parents are right by her side. However, it gets expensive to stay so far away from home. Travel expenses are piling up, and it looks as if they might be there up to a year. Thank you in advance for your kindness and God Bless you!!
10-5 Should be a pretty easy day ahead. Changing her dressing on her belly and pulling back her pic line in her right arm, it is in just a little too far. No planned weaning, just getting some rest. Yesterday she had a pretty good day with pain. They are pleased with how she is dealing with it. She is on a drip, but they haven't had to give her a bunch of extra pain medicine. Which is good.
All tests are complete, now the doctors will be looking at them and deciding if she is ready for surgery his week. They are hopeful that she will be ready. They should let us know tomorrow. She is chunking right up. They have been giving her some very high calorie lipids for about 3 days now. This is for her to gain weight so she will have lots of reserves for surgery. Only plan to wean a little flolan if the ECHO looks good.
Post from her daddy..."Aspen has just completed the first pre-operation MRI as a CDH patient. God strengthening Aspen has allowed for doctors to see how CDH effects babies before surgery. How the lungs work, the placement of her organs, how the position of the intestines and liver effect the lungs and heart, the size and position of the hole in her diaphragm, and many other things. This is a major accomplishment. Doctors have been able to do an MRI while inside mommy and after surgery, but never had a severe CDH baby strong enough to MRI before repair surgery. Everyone's prayers have helped strengthen Aspen to make this possible. God is great! Please continue to pray for Gods will to be done. Aspen, through prayer and God, is changing lives! We are thankful God has chosen us to care for one of his warriors. Aspen Strong!"
10-5Should be a pretty easy day ahead. Changing her dressing on her belly and pulling back her pic line in her right arm, it is in just a little too far. No planned weaning, just getting some rest. Yesterday she had a pretty good day with pain. They …