This is Esme. Esme is 2 years and 7 months old. She loves lions, narwhales and playing hide and seek outside. Right now we have no guarantees she will see her third birthday...
In June 2018 Esme at just 22 months old was diagnosed with high risk acute myeloid leukaemia whilst on holiday. She spent five months as an in-patient at the Royal Marsden, Sutton and received a stem cell transplant in September after three rounds of intense chemotherapy.
After six months of steady recovery, in April we heard the news we've dreaded; the leukaemia has returned to Esme's bone marrow.
We have sought the advice of several leading, global consultants that specialise within high risk AML. They have emphasised heavily that Esme's best chance of cure is a second transplant ASAP.
We are now fundraising to afford this treatment as in all likelihood it will not be available on the NHS. NHS policy is typically not to offer second transplants to patients who relapse within 12 months, but due to the aggressive nature of her disease, Esme simply may not have that long...
In the US and other private centres, second transplants are offered within one year. For her second transplant the plan would be to use an adult (rather than original umbilical cord) donor and manipulate more 'graft versus host effect' to eradicate the leukaemia - so there is every hope for a permanent cure.
Esme's parents, Will and Rebecca, are desperate to save Esme's life. She is their only child and Rebecca suffered 4 miscarriages (and 3 operations, one which nearly killed her) to bring Esme into the world. Throughout all her treatment Esme has been the epitome of resilience, positivity and cheekiness, and deserves a shot at a permanent cure for life.
we are still unsure of the exact figure as we're still in negotiation with a number of different hospitals (within the UK and abroad). However, we need to start now rather than wait until we have all the details - as by then it may be too late.
Unless you wish to specify a donation is solely made for Esme’s benefit, any monies unspent will be donated to The Children's Cancer and Leukaemia Group. If you make a donation specifically for Esme's benefit and for whatever reason we don't require private funds, we will reimburse via the platform.