Dear members, followers, loved ones and friends, our usual fundraiser and fundraising activities did not take place again last year due to Covid-19. As such , we have exhausted our funds and are finding it extremely difficult to continue providing our free support and information services, educational materials, and awareness resources. Money is needed to cover the printing and distribution costs for our new brochure, new fact sheets (SFN , facial, genital and others) as well as leaflets for our free global awareness campaign and our free education project for schools and universities. Web hosts , research subscriptions, outreach postage, stationary , support calls , resources and other miscellaneous costs also all to be financed.
You will already know that we do not charge memberships to join our organisation, nor do we hassle you for donations throughout the year - in fact, we hate asking for money! But to keep going , doing what we do , we desperately need funds!
If you are not yet a member of EM Warriors here is a quick recap on what we offer : free solutions focused support, up-to-date information, an extensive research library that contains many articles and papers that are only available through pay -to- view subscription , a large doctor's database - updated monthly, access to a range of highly educational EM-related topics, polls , facts and expertise not available anywhere else. More importantly, we offer understanding, compassion, solidarity, and friendship.
If you have recently become a member, you may not be aware that we share and impart knowledge across multiple online platforms as well as offer offline outreach services with the goal of empowering those touched by erythromelalgia by facilitating the tools for self -advocacy. We guide members through the diagnostic process and work-up, advise on additional testing, educate on how best to manage EM symptoms, recommend as to the best treatment protocols, and keep you informed about relevant clinical trials . We help members prepare for their consultations and even offer a one-to-one personalised email service to discuss and answer questions. We provide tips and strategies on how best to manage erythromelalgia looking at lifestyle, triggers etc.,as well as concurrent conditions and possible comorbidity. We even give support calls. We run exciting online events where members can win a fabulous t-shirt, hoodies, cooling Chillow pillows, cooling towels and many other fantastic freebies. Our team work very hard everyday to provide every single member , parent, medical professional or loved one with an awesome top notch service , and we want to keep that service free .
Our superb eye-catching awareness material is actually provided free of charge to medical professionals, hospitals , schools, universities, pharmacies etc. and to members who wish to distribute .Last year we successfully distributed over 25,000 highly informative erythromelalgia awareness leaflets across 15 countries. We also distributed leaflets on EM -associated conditions such as Raynaud's and Paroxsymal extreme pain disorder (PEPD) as well as our fact sheets. Understandably , it is imperative that we raise the funds needed to cover the production and distribution costs to continue this worldwide awareness project .
HOW TO DONATE 👍
This Go Get Funding page accepts donations via PayPal and Cards. The currency states USD but you can change the currency just by clicking the little arrow > next to the USD text
Donations can also be made directly to our PayPal Make a donation to The Erythromelalgia Warriorsor via our secure website http://erythromelalgiawarriors.ning.com/giving-back.
If you choose to donate directly, please ensure that you put the reference: Fundraiser 2021
Please contribute what you can afford . Donations, however small, add up and allow us to achieve remarkable things. This year to say thank you we will be gifting every donation over $25/£25 receives a free awareness bracelet or pin (photos and details below).😍
You can donate in any currency you wish. Cards are also accepted .
Remember, it is only through awareness and education that we can hope to bring about change. It is only through your donations and your support that we can raise the necessary funds to continue our work towards achieving this.
WHAT IS ERYTHROMELALGIA?
Watch our simple ' Erythromelalgia Facts' video to understand how this syndrome affects those living with erythromelalgia.
If the video is too fast or slow - change the playback speed ( the cog wheel on video says settings)
To add our video to your social media, copy and paste the link Erythromelalgia Facts Video 2021 or share from our YouTube channel.
JUST TO SAY THANK YOU! ❤
We are so grateful for your donations that this year we will be gifting an Erythromelalgia Warriors awareness pin or an awareness bracelet with every donation over $25 USD or £25 sterling 😍
After you have made your donation, you will receive an email with your reference number that informs you how to order your erythromelalgia pin or bracelet. Please note that you must order your pin or bracelet from us to receive. Closing date for all orders is October 30th, 2021.
(1) BURNING FOR A CURE : AWESOME EM WARRIORS AWARENESS BRACELETS
(2) ERYTHROMELALGIA AWARENESS: OUR EYE-CATCHING EM WARRIORS CHARITY PINS
THE GLOBAL AWARENESS CAMPAIGN
RAISING ERYTHROMELALGIA AWARENESS IN A LONDON CLINIC.UK
EXAMPLES OF EM WARRIORS AWARENESS RESOURCES
THE SCHOOLS, COLLEGES & UNIVERSITIES AWARENESS PROJECT
MEET AIDAN, A LITTLE EM WARRIOR DEDICATED TO RAISING EM AWARENESS. HE HAS EVEN WRITTEN A SONG TO HELP OUR FUNDRAISING .
Aidan, aged ten, received our community award for designing two amazing t-shirts to help raise EM awareness in children. This courageous young man has even composed a song about erythromelalgia to spearhead our 2021 fundraiser ( Listen to Aidan's song in the video top of this fundraiser). Aidan lives in Ireland with his mum, dad and sisters.
Here are the words to Aidan's song , which is sung to ' Let it be' by The Beatles
WHO ARE THE EM WARRIORS?
The Erythromelalgia (EM) Warriors is a dynamic non-profit international organisation dedicated to raising awareness of erythromelalgia and educating, encouraging and empowering all those living with or affected by erythromelalgia and its comorbidities. We are a volunteer-led support and information network that provides invaluable free 24-hour online and offline outreach services world wide.
- To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy.
- To advance knowledge and raise greater awareness of erythromelalgia by producing innovative online and offline projects and supplying a range of up-to-date educational material
- To develop and distribute erythromelalgia awareness resources
- To sponsor and support independent research projects through fundraising
- A world where there is greater understanding of EM and where the hope of a cure becomes reality.
NOT YET A MEMBER WITH US ?
If you are not yet a member , please join one of our many online platforms.
It is free to become a member of our organisation - we would love to meet you! 😀
To get involved in our awareness projects, join our design team , help with our website or organise fundraising events, please contact [email protected] ( children and adults)
For support or information, please email our support services [email protected]
Thank you for donating!
EXAMPLES OF AN ERYTHROMELALGIA FLARE