This fundraising page is to raise funds for a therapy the NHS wont provide. Emily attends Oxygen therapy at a centre in East Grinstead sussex. Its called the Scotson Technique. Part of the therapy is an hour in a High Dose Oxygen Therapy. A tank which pumps on oxygen to Emily she can read or play with a toy in there. I also go in with her. The main part of the therapy is to increase the amount of Oxygen to her brain to repair brain cells. The cost of the therapy is £500 for 5 days, every 3 months for 3 year commitment. £35 per day for the Oxygen tank.
I researched the centre before starting on the journey and the sucess rate is good. My hopes for it will give Emily a voice, improve her posture, improve her bowels, and help with behaviour and sleep.
Our local newspaper has done an article on us and the fundraising im starting. So far a charity has paid for the first visit, another are funding a years therapy. Accomodation isnt provided so trying to find the cheapesr places to stay. I dont have credit card so cant book and pay off monthly. Eg travelodge was £120 uf booked and paid 2-3 month before trip. When come to book it the price was £290 a month before the booked session. So fundraising for therapy and accommodation.
Emily Unwin was born 22-10-2006 with u diagnosed syndrome. He had features no doctor had seen before.Emily has cyst on her right eye, skin tags on face, talipese foot, hip displacier, small features. She was unable to suck from me or nottle so was tube fed.
Emily had genetic testing which came back with no results. Spinal tap to rule out meningitis as jer cry was high pitched. After leaving the special care unit at 3 week old Emily had werkly visits to be weighed as she wasnt putting on weight. I was told she had failure to thrive and to be prepared incase the worst happened. While in hospital the eye doctor visited and said her features were of a syndrome called Goldenhar. Emily has a mild form of it. Recently she has a diagnosis of Microcephaly which is small head and brain which isnt growing normally. Severe hearing imparement on right side, mild imparement on left side. She sleeps about 4-5 hours a nigjt with no daily naps. When shes in bed and awake she will shout and play. Emilys bowels dont work propetly so on daily laxatives. Her speach and communication is very limited and she babbles. Her development is of a 2-3 year old. She has severe learning difficulties. Emily started a special needs school in September. Our local special school is oversubscribed so they have government ffunding to open a unit in a mmainstream school in town. Thete are 12 kids in the class of ks2 and she likes it. Please help me improve the life of my daughter. Thank you.