Carpe Diem!!

The Ability To Be Mobile

Hello! I am the idiot in the SnapChat photo above, pleased to meet you, I am Nikki.

I am now 43 years old (I know, I don't look it!), but to my detriment I suffer from a horrid condition called Fibromyalgia. It is becoming better known due to the amount of sufferers there are around the world, but to the people who don't know, it is a condition that affects the fibrous tissue that surrounds all joints, it causes pain in every joint, from head to toe, leaving most of us housebound, unable to work or have a normal life of any kind.

In addition to fibromyalgia I also have hypermobility syndrome, which affects all joints, meaning the tendons do not hold to joints together properly, which causes pain.

Pain is my life. I take a morphine bases medication to allow me to get out of bed and move around the house with manageable pain, when it gets even worse I have lignocaine infusions. Know the stuff they pump into your gums when you go to the dentist to numb you before procedures? I have that pumped into my veins to give me an extra bit of relief.

I have sleep problems because of restless leg syndrome, also irritable bowel syndrome. My life sucks really.

When your disabled you have to plead to the Government to help. They apparently know every condition and how it affects people, and in their wisdom they told me that I don't have mobility issues, which was nice of them.

Anyway, this is the reason I am here. My car died 2 years ago. This means I have to take Patient Transport to the hospital for my appointments, when I come out after my procedure I feel like the bottom of a cats litter tray, and I have to be shunted from pillar to post to other patients addresses so they can be dropped off, and by the time I get home I am in bed for 2 days.

I would like to replace my car, so my husband (who is my full time carer) can take me to appointments, I have 4 in July already, I desperately need transport.

Thank you for all you time reading my essay, I hope you have a great day xx