As written by the parents of this precious little life:
"The results from Miles catheter test yesterday were not what we had hoped for. The pictures revealed that the coronary arteries don't supply the back side of Miles heart. As a result, the planned surgeries to repair his heart are no longer an option.
Miles needs a heart transplant.
We are still processing what we've found out. Things almost seemed simple, or at least planned, and orderly before we found out that his heart couldn't be repaired. Our surgeons and cardiologists have been very honest with us, and we know the cards are not stacked in Miles favour. There are many complicating factors, including keeping Miles alive long enough to try and find the heart he needs.
A meeting is being held Monday morning between our health team and the hospital administration to advocate for our cause. Normally heart transplants like this one take place in Edmonton, although in a couple exceptional circumstances they have been performed here at BC Childrens Hospital, which has an incredibly capable, sought after and experienced team. Moving to Edmonton to wait for a heart would mean the literal end of our family financially, which we've accepted, but it would also place an incredible emotional burden on our family, especially on our precious 2 year old Noah, that right now seems unbearable."
July 16, 2013 Update:
A really quick update Mid morning today, we had a very excited and flustered surgeon run into our room in the PICU and say "the hospital is listing Miles for the surgery here".
We are so happy. Words cannot express what a stress this is off of our shoulders. We still haven't heard from the ministry of health what their stance is on the issue, but obviously, someones chains have been rattled. We've had radio interviews with CBC kelowna, vancouver and kamloops. We just finished filming an interview with Global BC, and we are filming an interview with CBC television this afternoon.
We are so happy for this victory for our family, but we want to be sure this is a permanent change, and that when possible, it becomes standard procedure for these kids to have their operations in BC.
As a side note, our fundraiser page is making us gasp. I don't know who you are, but I can never say enough, I weep over my keyboard at your generosity. We would like everyone donating to know that what our family doesn't use while Miles is in treatment, will be donated back to the BC Childrens Hospital Foundation and Vancouver Ronald Mcdonald House.
Miles life, and all this love will touch more lives than we can imagine.
July 17, 2013 Update: