Mimi’s Journey with Apert Syndrome

Our Mimi has Apert Syndrome, a rare genetic disorder affecting 1 in 65,000 live births. She has craniosynostosis or early fusion of cranial sutures; cleft palate; right choanal stenosis and fused hands and feet. She stayed in the neonatal intensive care unit for 27 days and readmitted after ten days due to abdominal distention or enlargement. A lot of examinations were done including rectal biopsy.

We are asking for your prayers and financial assistance for her medical and surgical needs. At present she is for possible abdominal operation. At six months old she is scheduled for skull surgery in order to prevent brain damage and facial deformity. We also need financial assistance for the repair of her hands and feet in order for her to function well.

Our family will be very grateful for your prayers and kindness.