Hope for Mimi in struggling with Apert Syndrome

On 12 November 2019, my sister gave birth to a baby girl who is diagnosed with Apert Syndrome. It is a rare genetic disorder affecting 1 in 65,000 live births. She has craniosynostosis or early fusion of cranial sutures; cleft palate; right choanal stenosis and fused hands and feet. She stayed in the neonatal intensive care unit in a hospital in the Philippines for 27 days and readmitted after ten days due to abdominal distention or enlargement. In two months, a lot of examinations have been done including rectal biopsy.

At present, she is in hospital care and is being observed for possible abdominal operation. At six months, she is scheduled for skull surgery in order to prevent brain damage and further deformities. My sister has to leave from work for breastfeeding in the hospital.

While my sister and her husband are professionals, the low income rate in the Philippines and the lack of a universal health care, make it impossible for the couple to afford all of the expenses expected this year and beyond until Mimi’s condition stays better.

We are asking for financial support to cover Mimi’s constant hospitalization and medicine needs as well as series of surgeries.

Thank you for your kindness.