My 4 year old son Suffering from Red Skin Syndrome
Fundraising campaign by
Irhamna Taib
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SG$16,385raised of SG$17,000.00 goal goal
Campaign Story
My second child Ihsan Zulfaqar was born healthy. When he 6 months old, he had his first bronchial asthma attack & eczema. Pediatrician prescribed antibiotics & nebulizer (which contained steroids). Once recovered from the first wheezing episode his eczema became more frequent. He was constantly having either wheezing episodes or small rashes of eczema till he was almost 2 years old. The pediatrician then prescribed an immune suppressant cream for his stubborn eczema patches on his face. It worked for almost 5 months and then he's skin started to get worst.
We didnt know any better then so we brought him to the National Skin center & was prescribed topical steroid creams and another immune suppressant cream for his eczema by a specialist. 2 months later, his eczema spread to more parts of his body. We consulted the same specialist & he prescribed the same drugs for my toddler. 3 months down the road, his whole body flared. His skin was constantly itchy, he'll scratch till his skin ooze & bleed. That was when I did a research and learned more on Red Skin Syndrome from itsan.org. I decided to stop applying the creams cold turkey and go to a more natural route. We realized my son was going through Topical Steroid Addiction (TSA) and the process of the skin goes through is called Topical Steroid Withdrawal (TSW). That was September 2015. It wasn't easy! Every day & night there were tears, blood, dry flaky skin all over the place and constant cries. I had to quit my full time job & look after him and my eldest child back then.
We tried traditional Chinese medicine, natural herbs & remedies, many supplements, essential oils & currently he's still on homeopathy pills. Since my husband is the sole breadwinner, it's been financially stressful for us. Organic food is not cheap, we have spent so much on his medical supplies & supplements and we are running dry & out of hope.
It's been 17months now that my son has suffered. We want to get to the end of this tunnel soon and we found a naturopath nurse who's based in Auckland, New Zealand who is well knowledged on his condition as her child went through the same before. There are other doctors who are based in USA & Japan as well who can help treat my son's condition but we cannot afford to pay for the trip as they are more expensive & the flight duration is too long. I'm trying to find solutions to make my son comfortable during the trip as well as he will feel itchy and bleed still.
We have to bring our other two children as well since no one in our family is able to look after my other two children if we can make it for the trip. My youngest is only 6 months old and I am still nursing him fully.
We seek your kind support to help us raise the funds for us to consult the naturopath based in NZ since that is the nearest & cheapest medical help we can find. We also want to raise awareness that this Red skin syndrome due to topical steroids is serious and affecting many people around the world. We need the medical doctors worldwide to recognize this condition as it is very serious. It breaks families apart, causes low self esteem & even depression to the sufferers!
I want my son to be happy like any normal 4 year old child soon. He has missed out a lot of his childhood due to his condition. Please help us gain his self esteem back! Thank you
Organizer
- Irhamna Taib
- Singapore, SG
Donors
- Farah Fuad
- Donated on Jan 22, 2019
- Guest
- Donated on Sep 11, 2017
- Anonymous
- Donated on Sep 10, 2017
Much Gratitude to all those who have contributed!
Update posted by Irhamna Taib at 08:31 amPeace be upon everyone. Today marks Ihsan’s 6th birthday. I would very much like to say that he has recovered fully but that is not the case. I would just like to update everyone on his previous progress and current situation. His skin did improve a lot after we followed. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 10:09 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 04:16 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 04:15 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 04:12 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 04:12 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 03:51 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One year after visit to Doctor in Osaka
Update posted by Irhamna Taib at 03:51 pmI wished I could tell my dear supporters that Ihsan has healed completely. But unfortunately that has yet to happen. We have tried to visit Dr Sato in Osaka again last year but it was impossible as the funds were used for his hospitalization due to asthma attacks, his organic. . . . .
One month after TCM treatment
Update posted by Irhamna Taib at 02:51 pmI am feeling down writing this. We tried Taipei TCM treatment that we consulted with in KL for Ihsan. First week his skin lesions improved. But then second week, he had flu, then we continued again the treatment (herbal bath, spray & cream) and added the oral herbs after he. . . . .
One month after TCM treatment
Update posted by Irhamna Taib at 02:50 pmI am feeling down writing this. We tried Taipei TCM treatment that we consulted with in KL for Ihsan. First week his skin lesions improved. But then second week, he had flu, then we continued again the treatment (herbal bath, spray & cream) and added the oral herbs after he. . . . .
Donors & Comments
- Farah Fuad
- Donated on Jan 22, 2019
- Guest
- Donated on Sep 11, 2017
- Anonymous
- Donated on Sep 10, 2017
- June Scott
- Donated on Jul 02, 2017
- Anonymous
- Donated on Mar 13, 2017
- Anonymous
- Donated on Mar 12, 2017
- Anonymous
- Donated on Mar 10, 2017
As salaamualaikum dear sister. may Allaah grant you sabr, may Allaah cure your little boy soonest and relive all pain. may Allaah make everything easy. just a little amount which i am capable of. Be strong ye. umm abdur raqeeb
- Guest
- Donated on Mar 10, 2017
Get well soon 🙏
- Anonymous
- Donated on Mar 09, 2017
- Anonymous
- Donated on Mar 07, 2017
Darling Dear, As much as I am sad and taken aback of how ur little tot body can withstand all this pain, I do not want u to feel pitied cos I know each individual deserves a recognition for their fighting spirit! I hope the NZ team is able to bring u wellness and u can soon run about and make mummy suffer the cArdio u will put her into. :D But it's not fair! Ure so handsome! Let me tell u mummy, once all has cleared up-it defo will! Have faith in that (: U might have to deal with the q of girls for this heartbreaker here(: May ur search for a remedy be in ur favour.