Nov 08, 2018 at 01:22 pm

Our little fighter..

Update posted by Amanda Limcuando

They say preemies are really little warriors and I can say that Joaquin is one of them. The past week has been a rollercoaster ride for us. There were a lot of happenings which tested our patience, faith and love. But what keeps us strong is our Baby's bravery and strength to fight for his life.

Last oct. 27, we transferred from private division to clinical division since our expenses are really high and we were afraid we cannot sustain the needs of our baby. Our 12 day stay in private division costs a total of 460k. Thank God, my company provided assistance which helped alot in discharging since we have to settle everything first prior transferring to clinical. In clinical, there will be no PF, discounted laboratory costs and same treatment to be given to private patients. However parents need to be on call 24/7 since we need to pay in cash everyday for our baby's meds and lab expenses. To date, we are averaging around 10-15k per day including his aNtibiotics.

Baby is still battling his sepsis as of today. As per doctors, the bacteria (seratia) is really hard to treat and it takes a longer time than usual infections. Our baby is still having transfusion almost every other day for the past 2 weeks since his platelets are still low due to the infection. His NEC also affects the lowering of platelet a lot. His antibiotics were now changed and they gave him the 2 strongest meds, which we pray will now work.

Yesterday was supposedly a memorable day since we had our baby baptized already in NICU. We wanted him to be admitted already kn the Christian world and at the same time accept God's healing. However last night, when i was at Nicu His oxygen and Heartrate lowered due to blood clogging in his tube. He was again intubated 2 days ago because he had a hard time breathing. I saw him having a hard time breathing and his color was changing. His oxygen dropped to 50 and Heartrate to 60. Doctors rushed immediately to him to revive his oxygen.

We are now praying hard that antibiotics will already work and fight the infection already. As a mother it is really hard to see your baby with wires and tubes but I just need to remember that it is still for his own good. That our baby really fights for his life despite those sickness he has. In our everyday visit we just talk to him and tell him that we will never give up on him and we will alwAys fight with hiM no matter what.

I know these hard days shall pass and My faith in God is really strong that He will heal my Baby. I am looking forward for the day that we will be able to carry him, feed him, hug and kiss him. But I even it takes days or weeks, I wont mind as long as baby gets healed. 🙏🏻

This is also the time that we get to thank all the blood donors who helped us since our baby's blood is AB positive and we always have a hard time looking for platelet concentrates for his transfusion.

We ask for your continuous prayers for Baby Rocco.

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