Jul 24, 2017 at 05:37 am

Prayers from the USA

Update posted by Marcell Bruynius

Many have been asking about my nephew so I thought I would give everyone an update. My 5 month old nephew in South Africa (Ferdi's sister's son) is currently fighting for his little life. He was born with a metabolic disorder that has gone undiagnosed and untreated. They are still not sure of his exact diagnosis but all signs and symptoms are suggestive of pyruvate carboxylate disorder with a French phenotype or a mitochondrial disorder. Both have poor outcomes, especially if left untreated. The doctors and hospitals in SA have told them they are unable to perform any further testing and treatment has also been limited to controlling his seizures. We have started the process of trying to get him to CHOP for further testing. They are currently reviewing his case. Please be praying for this little boy and his parents. We will keep everyone posted if we are able to bring him here.

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