ZAR45,461raised of R200,000.00 goal goal
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Baby Markus is a miracle baby born on the 25th of January 2017 at 33 weeks weighing 2.115 kg via emergency C-Section. Mommy and Day only had the privilege of holding Markus for the first time on the 29th of January 2017. Baby Markus had to stay in hospital for 25day and on the 19th of February the de Beer family could take Baby Markus home.
Valeska (Mommy) started to pick up a concern where Markus cried a lot after she fed him an noticed a little bump on his tummy which he went for a Bilateral Iguinal Hernia operation in May. On the 27th of May when Valeska and her husband woke up Markus was just staring and not drinking and decided to rush him to Netcare Pinehave Hospital. Doctors did blood tests, MRI Scan, Lumber puncture & EEG scan which. Markus was sent home on the first of 1 June 2017 with a diagnoses of epilepsy and start treatment on Epilum.
Markus was in and out of the hospital from the 11th of June up until the 13th of July 2017. During the course it was finally detected that Markus has a metabolic disorder and struggled to find a doctor, Neurologist or Paediatrician qualified to treat Markus.
As a final cry for help Markus was taken to Unitas to Doctor Libbert (Pediatrician Neurologist) which confirmed that Markus will have to go to America for treatment as America and England are the only 2 countries in the world that can help with treatment. Markus now has to go for a W.E.S (Whole Exome Sequencing) and further testing and hopefully find a possible treatment which needs to be done as soon as it is possible.
Markus is currently on medication to try and suppress his fit that he gets every single day and if not treated could en up with permanent brain damaged.
Any donation that can be given to help baby Markus will be appreciated by the family. Mommy and daddy waited 8 years this miracle baby. The family need to cover cost for their flights, transport, meals and accommodation which is indefinite.
The remainder of the funds that will be left over will be donated to the children's hospital treating Markus in Philadelphia to support finding cures for babies like Markus.
Donations can also be made directly to the family. Their banking details are as follow:
Mr. Markus de Beer
Account number: 1151895903
Type of account: Current Account
Branch name: Krugersdorp
Branch Code: 198841
- Marcell Bruynius
Markus update to dateUpdate posted by Marcell Bruynius at 01:59 pm
#MarkustoUSA Markus had his check up at his Pediatrician today and the Pediatrician confirmed that Markus's muscle development is of an 6 week old baby. Markus is turned 7 months this week. Markus also has a change of becoming completely disabled.Up to date the funds we recieved are standing at. . . . .
28 July 2017 - The Children's Hospital of Philadelphia - Application for Markus de Beer with Metabolic DisorderUpdate posted by Marcell Bruynius at 06:22 am
Markus will be scheduled for outpatient appointments, so he will be able to remain with you in your local hotel/residence. Macy is actively working on the cost estimate. Once this is finalized, we will send to you for payment. Appointments will be scheduled once payment is confirmed. Please note that. . . . .
Latest update from the hospitalUpdate posted by Marcell Bruynius at 05:40 am
Hello Valeska and Martin, I hope you are doing well today. Our medical consultant has reviewed all of the medical records submitted for review. We would be happy to see Markus in the Mitochondrial program at CHOP for further evaluation. The plan would be to repeat biochemical testing (lactate, pyruvate,. . . . .
Documents have been submitted and now waiting for America and PassportUpdate posted by Marcell Bruynius at 01:12 pm
22nd July 2017To whom it may concernThe Children’s Hospital of PhiladelphiaRoberts Center for Pediatric ResearchC/O Intake Co-ordinator, International Patient Services2716 South Street, 7th FloorPhiladelphia, PA 19146Re: Markus De BeerDear Colleague,Thank you very much for seeing this 6 month old boy with seizures and an Inherited Error ofMetabolism.Birth History:Emergency Caesarean Section. . . . .
Prayers from the USAUpdate posted by Marcell Bruynius at 05:37 am
Many have been asking about my nephew so I thought I would give everyone an update. My 5 month old nephew in South Africa (Ferdi's sister's son) is currently fighting for his little life. He was born with a metabolic disorder that has gone undiagnosed and untreated. They are still. . . . .