Markus De Beer is 5 months old with Metabolic Disorder – We need to get him to the USA

Baby Markus is a miracle baby born on the 25th of January 2017 at 33 weeks weighing 2.115 kg via emergency C-Section. Mommy and Day only had the privilege of holding Markus for the first time on the 29th of January 2017. Baby Markus had to stay in hospital for 25day and on the 19th of February the de Beer family could take Baby Markus home.

Valeska (Mommy) started to pick up a concern where Markus cried a lot after she fed him an noticed a little bump on his tummy which he went for a Bilateral Iguinal Hernia operation in May. On the 27th of May when Valeska and her husband woke up Markus was just staring and not drinking and decided to rush him to Netcare Pinehave Hospital. Doctors did blood tests, MRI Scan, Lumber puncture & EEG scan which. Markus was sent home on the first of 1 June 2017 with a diagnoses of epilepsy and start treatment on Epilum.

Markus was in and out of the hospital from the 11th of June up until the 13th of July 2017. During the course it was finally detected that Markus has a metabolic disorder and struggled to find a doctor, Neurologist or Paediatrician qualified to treat Markus.

As a final cry for help Markus was taken to Unitas to Doctor Libbert (Pediatrician Neurologist) which confirmed that Markus will have to go to America for treatment as America and England are the only 2 countries in the world that can help with treatment. Markus now has to go for a W.E.S (Whole Exome Sequencing) and further testing and hopefully find a possible treatment which needs to be done as soon as it is possible.

Markus is currently on medication to try and suppress his fit that he gets every single day and if not treated could en up with permanent brain damaged.

Any donation that can be given to help baby Markus will be appreciated by the family. Mommy and daddy waited 8 years this miracle baby. The family need to cover cost for their flights, transport, meals and accommodation which is indefinite.

The remainder of the funds that will be left over will be donated to the children's hospital treating Markus in Philadelphia to support finding cures for babies like Markus.

Donations can also be made directly to the family. Their banking details are as follow:

Mr. Markus de Beer

Nedbank

Account number: 1151895903

Type of account: Current Account

Branch name: Krugersdorp

Branch Code: 198841

Reference: #MarkustoUSA