Mar 02, 2017 at 01:12 am

PEG Tube Insertion

Update posted by Maria Shiela Camba

Hi everyone, Cezar has been transferred to St. Luke's QC yesterday for his radiotherapy planning and PEG tube insertion. He is currently in the operating room for EGD and PEG tube insertion.



Pain is now controlled with a morphine drip since oral intake is impossible. He wanted to eat so bad last night (he said he wanted to try to eat something soft) but had to fast for his procedure today. He hasn't had anything by mouth since Monday except for a sip or two of water which he eventually threw back up.



Radiotherapy is being fast tracked and they want to give him a dose today but we have yet to receive word on whether this will push through. Latest start date of his radiotherapy is Monday.



The mass is now 6.7x6.3x6.1 cm and causing him unbearable pain when not on heavy pain meds. We are hoping that once the PEG tube is functional, he will be able to continue his oral meds without issues. It hurts to see him begging to be drugged enough to fall asleep just so he can't feel the pain. But he is bravely fighting for his life and so I will fight this disease with him. I always remind him that there are a lot of people waiting for his recovery and he would always answer with a smile and a thumbs up.



Whole body scan showed no cancer anywhere else (praise God!). The lymph node closest to the tumor is being suspected for metastasis or cancer spread but our radiation onco has already mentioned giving low doses on this area as precaution.



His body is weak from having no food for the last 4 days and his mom and I decided to get him a solo private room so as not to compromise his health (xray confirmed that his left lung appears to be compromised due to his breathing difficulty). We are still waiting to be transferred to a much, much cheaper room as soon as there is a vacancy. We had to wait 7 hours yesterday just to get him a room. We just cannot delay the tube insertion and the radiotherapy fitting anymore and I guess we'll just have to try to cut costs somewhere else.



I'm asking for your prayers again. I would also like to ask you to please share our funding page for more people to see. I went to social service but the tumor is growing so fast that it's not possible to wait for the approval of our medical assistance applications (but we are still pushing forward in case we can reimburse).



We have gotten Cezar a PWD ID (right eye is not functional anymore) and this along with Philhealth has gotten us some good discounts but the bills are piling up and we just can't keep up. He needs 24/7 care now because his tumor and the closed up right eye is causing major balance issues and even sitting up is difficult for him. The only relief he gets now is from his morphine drip and even with morphine he is not fully functional. He has also gotten some withdrawal symptoms (chills and excessive sweating) from being unable to take his 3 other oral pain meds. Going to the bathroom is a large challenge and even sleeping is difficult for him.



It is so hard to make a move when his tumor is growing faster than we can ever adjust to. Unfortunately for us, urgency means things are not going to be cheap.But we are not losing hope. We will fight for his life for as long as we can. We will do everything in our power to make sure that he gets through this alive although scarred. I will update you all as soon as he gets back in his room and hopefully this will help him get through chemo and radiotherapy easier.

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