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Update posted by Maria Shiela Camba On Jun 07, 2017

Update on Cezar's Condition

Admitted to the hospital yesterday since he had a fever on the last day of his antibiotic. Docs say it's because the meds weren't strong enough to get rid of the infection. He also has body pain and difficulty breathing.

He has been admitted to a private room because there are no isolation rooms available in the charity ward. They can admit him in the ward while waiting for an isolation room in charity but I would have to sign a waiver that hospital will not be liable if he catches a different disease during his stay and I just can't take that risk. I am currently talking to maxicare peeps because I was told that Cezar actually has a different benefit limit per illness (and that a pneumonia diagnosis would make them cover the hospital stay).

Please pray for Cezar to get better soon. Thanks everyone and God bless!

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Update posted by Maria Shiela Camba On Jun 07, 2017

Update on Cezar's Condition

Admitted to the hospital yesterday since he had a fever on the last day of his antibiotic. Docs say it's because the meds weren't strong enough to get rid of the infection. He also has body pain and difficulty breathing.

He has been admitted to a private room because there are no isolation rooms available in the charity ward. They can admit him in the ward while waiting for an isolation room in charity but I would have to sign a waiver that hospital will not be liable if he catches a different disease during his stay and I just can't take that risk. I am currently talking to maxicare peeps because I was told that Cezar actually has a different benefit limit per illness (and that a pneumonia diagnosis would make them cover the hospital stay).

Please pray for Cezar to get better soon. Thanks everyone and God bless!

Add a Comment

Update posted by Maria Shiela Camba On Jun 07, 2017

Update on Cezar's Condition

Admitted to the hospital yesterday since he had a fever on the last day of his antibiotic. Docs say it's because the meds weren't strong enough to get rid of the infection. He also has body pain and difficulty breathing.

He has been admitted to a private room because there are no isolation rooms available in the charity ward. They can admit him in the ward while waiting for an isolation room in charity but I would have to sign a waiver that hospital will not be liable if he catches a different disease during his stay and I just can't take that risk. I am currently talking to maxicare peeps because I was told that Cezar actually has a different benefit limit per illness (and that a pneumonia diagnosis would make them cover the hospital stay).

Please pray for Cezar to get better soon. Thanks everyone and God bless!

Add a Comment

Update posted by Maria Shiela Camba On Jun 07, 2017

Update on Cezar's Condition

Admitted to the hospital yesterday since he had a fever on the last day of his antibiotic. Docs say it's because the meds weren't strong enough to get rid of the infection. He also has body pain and difficulty breathing.

He has been admitted to a private room because there are no isolation rooms available in the charity ward. They can admit him in the ward while waiting for an isolation room in charity but I would have to sign a waiver that hospital will not be liable if he catches a different disease during his stay and I just can't take that risk. I am currently talking to maxicare peeps because I was told that Cezar actually has a different benefit limit per illness (and that a pneumonia diagnosis would make them cover the hospital stay).

Please pray for Cezar to get better soon. Thanks everyone and God bless!

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Update posted by Maria Shiela Camba On May 19, 2017

Xray result confirmed that Cezar has pneumonia. Doc wants to admit him but we refused since there are no available isolation rooms in the charity ward which may put Cezar at a greater risk. He was talkative at the ER (Doc says he looks 'inadmissible' but they always want to make sure hence the suggestion of confinement) and was answering most of the questions (I usually do all the talking lol). We signed a waiver to be sent home and medicate here. We were given symptoms to watch out for that could indicate a worsening condition (whole day of fever, lethargy, etc) and prescribed strong oral meds to be taken through PEG.

Cezar says he feels fine and also didn't want to be admitted. He says he can't eat sotanghon at the hospital and it also wouldn't be practical to heat food at home and bring it to UERM :P His feeding kit is also an issue since sterilizing them is a lot harder when done in the public bathroom plus the fact that only one watcher is allowed per patient. I asked him to let me know if we need to rush back to the ER and he agreed.


He is now sleeping and feeding. Meds will be given after dinner when he has had something heavier to eat. Prayers, prayers, prayers! With God nothing is impossible. :)

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Update posted by Maria Shiela Camba On May 19, 2017

Update on Cezar's Condition

Cezar has been able to eat chicken sopas, rice (mashed with LOTS of soup/sauce, afritada (small shredded pieces), taho, ice cream, and some shredded fish. :) His new best friend is ginger tea with honey which soothes his sore throat.

We talked to his med onco this morning and we were given requests for cbc and chest xray (he has some chest pain and doc wants to rule out pneumonia). Not sure how much he weighs now as the scale we have at home isn't very reliable but since he started eating again, he has started to gain some color (his ears are now pinkish) were as he was so pale before. Demeanor has taken a turn for the better and he seems to be a lot more cheerful these days. For the past 3 days he has been able to join us at the table for breakfast (we usually just sit side by side in his slanting chair) :)

Formula feeding has been cut down to 2-3x a day unlike 2 weeks ago when we had to formula feed him 5-6x a day. He can now drink a lot of water so hydration doesn't have to be done entirely through his peg tube.

Tumor protruding from the gums is no longer visible, his gums look like regular gums with no teeth. The small part of the tumor seen inside the the right nostril is no longer present. His nose is no longer bleeding. He has a discharge from the right nostril but it has changed color from dark brown to a light yellowish color. Rad onco says this is necrosis and what we are seeing are parts of the tumor disintegrating. Before radiotherapy started, he would have this continuous flow of old blood from the right nostril. Doc says it's because the tumor was still connected to his vascular system and feeding from his blood..Now that the tumor is supposedly dead, it is no longer acting like a parasite and feeding off of his blood. This is the reason the tumor is no longer bleeding (because it doesn't share its blood supply with Cezar anymore). Last cbc showed regular blood count, we are hoping it's going to stay that way.

Surgery will probably be in 6 weeks or so. Please pray for us some more. I know all of you are quietly praying and wishing for his recovery and we just want you all to know that we appreciate your kindness. Thank you and we hope you have a wonderful rest of the week!

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Update posted by Maria Shiela Camba On May 15, 2017

Update on Cezar's Condition

Radiation onco wants repeat scan in August, surgical onco wants it done ASAP. They agreed and moved the scan to first week of June. Surg onco checked Cezar's gums and right nostril and said that it was better if we have the surgery soon. He's very positive about the shrinkage and does not want to waste time. Everything is on hold until then.

Great news - Cezar has started eating again! ūüėć All he eats is chicken sotanghon because it's the only texture he can tolerate for now, but at least he isn't relying solely on formula anymore. His throat is still very much sore but we are able to manage it a little with numbing mouth wash. We can't wait for him to go back to his previous eating habits.

Thank you for all the prayers and please pray for us some more. We are always praying for all of you too. :) We hope you have a wonderful rest of the week! God bless us all!

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Update posted by Maria Shiela Camba On May 15, 2017

Update on Cezar's Condition

Met with Cezar's Rad Onco today. Repeat scan will be in August with periodical xrays in June and July. This is to allow the inflammation in the area surrounding the tumor to go down. Right now the only indicator we have that the tumor has gotten smaller are the ff

Tumor protruding his gums no longer visible

Pain meds cut down significantly with no issues

Cezar can now open his right eye without getting dizzy (he still keeps it closed because of the double vision)

Right eye no longer bulging

He can smell on and off now

Part of the tumor visible inside his right nostril can no longer be seen

Bridge of the nose no longer tilts to the left

Right now our goal is for him to gain weight in prep for his surgery. Doc says the sores will heal in a week or two so it will no longer be painful to swallow, talk, or eat. In the next few weeks as the swelling goes down he will be able to breathe normally again. It's a long wait but we trust in God's plan and know that His timing is always right. Please pray for Cezar's healing. As always, thank you all for the support and God bless you all!

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Update posted by Maria Shiela Camba On Apr 28, 2017

Monday will be the last day of radiotherapy. Treatment summary and next steps will be discussed on Wednesday. Appointment with oral surgeon later to replace Cezar's plastic crowns (without them the teeth underneath will hurt a lot, we cannot afford titanium crowns and infused to metal crowns will be an issue when he comes in for an MRI and they're pricey too). We're trying our best to keep him hydrated and surprisingly chemo side effects weren't as bad as they were the last 2 cycles.

We're asking for prayers that his surgery can be scheduled soon. I know God will take care of my husband and I know God will heal him. Please join us in prayer as we ask God for guidance, strength, and the will to fight this disease. Thank you and may God bless us all!

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Update posted by Maria Shiela Camba On Apr 28, 2017

Done with chemotherapy! 4 more radiotherapy sessions then we talk to Cezar's doctors for the next step. He told me he has been feeling less pressure on his right eye and although the same eye still has double vision, he is able to open it without getting dizzy.

WBC is now close to normal, same with his platelets. Chemo can be harsh but he's holding up and we've been praying a lot. We're just doing our best to keep him hydrated and hopefully the side effects will wear off soon.

His salivary glands seem to be drying up from all the radiation. Now he's dealing with dry mouth that's worse than ever, but at least his neck burns have gotten better and we have been able to keep his weight at 62kgs. Unlike his last 2 chemo cycles, he has more energy now and he's more talkative.

Thank you guys for all the prayers. We are also praying for all of you. May God bless us all!

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Sean McCarthy

Backed with $50.00 On Jun 03, 2017

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Stay strong. Hoping for the best.

Faith Obach

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Stay Strong Cezar and Shiela

Francis Galvan

Backed with $20.00 On May 01, 2017

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Nearly finished Caesar!

Simon Mansell

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My thoughts, prayers and heart is with you. x

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Chuck On behalf of Fabrizio

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Guest

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I hope you get better soon! All the best.

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Wish you all the best

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