Jul 13, 2015 at 09:14 am

Puebla! im longing to meet you !

Update posted by Anita K. Pettersen

Hi everyone :) i have now been without medication for 14 days, as i got to have a "washout" of the DMD`s 3 months before my treatment. I have been to many checkouts to be prepared for my treatment..One of them was an MRI with contrast for my brain since i havnt felt " alive " since i started the DMD called Tecfidera ( Okt. 14) . I know it should be possible to live a close up "normal" life with MS and i have had many problems by accepting the fact, that im not among those who can live and feel normal in my everydaylife.....My date in Puebla cant arrive to soon! The MRI of brain, just concluded that the DMD, didnt work out for me...2 new relative big lessions has occured...and gave me the reason WHY i have been feeling even MORE crappy than before...to shorten a looong story..im in a flaire right now...that gives me dizziness, problem with my balance, my left foot and arm are not under my control anymore...and FATIQUE.... My energy are like zero..no energy to socialize, no energy to spend time with my loved ones.... Between my necessary checkouts, im just spending my time on the sofa..mostly lying...and bed..thats it! It breaks my heart to see my loved ones disaponted that mam or grandma dont have the energy to have conversations with, to play with, and so on...HEARTBREAKING

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