Our story of Ben – our warrior xxx

Update posted by Jenni Boyce On Nov 21, 2017

Ben The Warrior's photo.

NOV25

Ben the Warrior - Walking Together

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  • clockSaturday at 8 AM - 12 PM4 days from now
  • pin1A Libertas Street, off Sloane Street, 2069 Bryanston
  • ticketTicket Information www.quicket.co.za

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Ben the Warrior – Walking Together

The journey of a thousand miles, begins with a single step…
Over the past few months, we have experienced a phenomenal, life-changing event – and every step of the way we have felt the profound love and support of so many wonderful people – many of whom are strangers to us.
We would like to invite you all, to join Ben, his family, friends and loved ones for a morning of unadulterated celebration of the miracle we have all been privy to.
On Saturday the 25th of November, thanks to the incredible generosity of PWC – who have opened up their magnificent facility to us for the morning, we will be hosting a symbolic walk-a-thon through the beautiful trails at the PWC Bike Park

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Update posted by Jenni Boyce On Nov 03, 2017

To all the wonderful supporters of Ben the Warrior x
Here is an up to date video of our little champion during this morning’s physiotherapy.
Despite being thrilled by the strength developing in his left side and core, my favorite part of this is when his little bum pops up into the air, and then his smiley little face follows suit 😂
Forever the clown and little show-off for the camera - and boy, you have every reason to!
We remain in awe of you Ben and we are more proud and grateful than words could ever express x x x
Much love
#teamben

See Ben here!

https://www.facebook.com/116324449074543/videos/12...

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Update posted by Jenni Boyce On Nov 03, 2017

Good morning friends, fans and loved ones!

Please go to https://www.quicket.co.za/…/36775-ben-the-warrior-walking-…/ to get your tickets for this much anticipated event!
For security reasons, there will be no cash sales on the day.
We cannot wait to see you and your families for a wonderful morning celebrating life and miracles.
Much love
#teamben

Image may contain: 1 person, smiling, text

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Update posted by Jenni Boyce On Oct 13, 2017

Today marks the 7th day and the first week out of hospital and back at home x

It's been a busy time filled with Physio, OT, speech therapy and today... a first swimming lesson! Which was amazing to witness x x

We have all been overwhelmed with emotion at the brave and passionate approach as Ben the warrior takes all these challenges head on and as always - with a smile.
He keeps saying 'I'm so happy' ❤️❤️ Of course happy doesn't even begin how we all feel. Neither does grateful. Or blessed. There actually just aren't words. Often just tears of joyand an embedded sense that we are all changed by this journey and that an amazing gift has been bestowed upon us - we are the humble spectators of what is truly a miracle.
Wishing you all a love-filled weekend with your families x x x I know ours will be ❤️
#teamben

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Update posted by Jenni Boyce On Oct 13, 2017

We are out of the hospital and finally back at home!

After 7 weeks to the day in hospital, Ben the Warrior has finally come home. We are all immeasurably grateful and continue to watch in awe as every day, our little guy, full of smiles and love, shows incredible grit and determination as we embark on the long road of full rehabilitation.

Ben’s out of hospital treatment, for the foreseeable future will include:

-Daily Physiotherapy (for building core strength, full use of his left side impacted by the paralysis, and building new neuro-pathways for all gross motor skills impacted largely by the haemorrhage on his basal ganglia)

-3 x per week Occupational Therapy (which is upper body coordination, fine motor skills including learning to write again, and scholastic development – the full spectrum from mathematics to the alphabet and everything in between!)

-2 x per week Speech Therapy (the paralysis doesn’t just impact external limbs, but also the internal organs including vocal chords – the therapy rebuilds both the muscles as well as neuro-pathways to relearn swallowing and speaking)

-2 x per week Play Therapy. Although one may not realise, the trauma suffered spending 3 weeks in an ICU environment, having to relearn basic skills and the psychological impact of what Ben has been through is massive. The Play Therapy is essential to his psychological well-being associated with these traumas.

-3 x per week swimming lessons – yes, along with all the other abilities Ben needs to relearn to swim! This is also an awesome complimentary exercise for physio in building strength and endurance.

Not only are all of these therapies absolutely essential, but they do come at a cost – both monetary and from a time point of view – all are done at therapy centres outside of home and cannot always be run consecutively due to over-exertion, stress and tiredness being major triggers for the on-going threat of seizures.

Which highlights the next consideration regarding the crazy daily medicinal regime. Ben is on a number of anti-seizure and organ protection medications – a large portion of which are unfortunately not covered by medical aid.

Ben’s families agreed that it was in the best interest of Ben, his 2 brothers and the consideration given to the huge time commitment all this takes, that his mom, Olivia would take a medical sabbatical to dedicate both the last few weeks that Ben was in hospital and the next 6 weeks following this, to rehabilitate their son. Ben will only go back to school next year, and requires full-time care until that time.

Following the incredibly generous contributions received during Ben’s stay in hospital for the co-payments for the specialist treatment he received, we are now entering phase two of his full recovery and are looking for ways to raise funds to cover these therapies over the next few months.


Please keep an eye out for sponsorship opportunities as his Dad, James will ride with #teamben in the Wines to Whales, 94.7 Cycle Challenge and the Cape Epic.

We will also be arranging a Fun Walk aimed at children and families – most of whom are in our network already – with amazing children following Ben’s progress and recovery with so much love and concern.

If you have any ideas or suggestions – we would love to hear from you! And once again, to all of you incredible earth angels who have already made greatly appreciated contributions, prayed for Ben, sent love and showed the most heart-warming support – THANK YOU!

We could not be doing this without you.


We said right from the start of this life-changing journey, that Ben the Warrior would not suffer in vain. Let us hold close to our hearts our family and loved ones, knowing that time is our most precious commodity. Use it wisely, with love and kindness.

Much love always

#teamben

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Update posted by Jenni Boyce On Oct 10, 2017

A massive THANK YOU to Karen Neary for putting us in contact with the amazing team at EyeGym - who have generously sponsored Ben with a training program which will beautifully compliment his other therapies on his journey to full recovery.
Concentration is a critical component of rebuilding neuro-pathways - any "bad habits" formed during this rehabilitation can end up sticking if any re-learning of basic skills are rushed.
As an 8 year old boy, Ben's concentration was never something to rave about 🙈 and is now a really big challenge for him - we are so excited by the prospect of this amazing program assisting with this, spatial awareness and fine motor skills.
Once again we are blown away by the generosity and kindness of people during this time xxx
#teamben

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Update posted by Jenni Boyce On Oct 10, 2017

Day one of many for Ben the Warrior at this amazing little Centre. As with most places in life, it is the people here that make it so special.

We have encountered the most phenomenal healthcare professionals in the past 2 months - people with the magical combination of incredible skill coupled with heartfelt empathy.
For them, and all of you, we are truly grateful.
Much love always ❤️
#teamben

Image may contain: 1 person, smiling, tree, child, grass, outdoor and nature


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Update posted by Jenni Boyce On Oct 10, 2017

Today was a good day x scratch that - today was a great day x
We've had such crazy mixed emotions getting our little warrior home.
Firstly, being the overwhelmingly kind and compassionate kid that he is, Ben was devastated to leave all the people who fell in love with him, and he with them. He wanted to go back to the hospital 🙈
Since then we have been somewhat scared and stressed about the enormity of the responsibility associated with his arm-length of medication, checking on him every 30 mins throughout the night to see he's still breathing and trying to prevent him from face planting every time he moves around the house.
But how could we possibly complain? We have our miracle child home. A once impossible consideration.
Ben, you continue to amaze us with your determination, progress and resilience.
You are so loved xxx
#teamben

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Update posted by Jenni Boyce On Oct 10, 2017

First steps.... for the second time ❤️
There have been endless tears of happiness today.
Not only did this miracle occur, but the most amazing, heartwarming, exciting and once unthinkable news... today Ben is being discharged!!! Exactly 7 weeks to the day xxx
Ben the Warrior is going home ❤️
Sending you and your family all the love and best wishes on the greatest and happiest Friday ever xxxx
#teamben ❤️❤️❤️

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Update posted by Jenni Boyce On Oct 10, 2017

"Look mom, no hands!"
We are on the precipice of an exciting and terrifying new chapter in the journey of Ben the Warrior.
This smiling, loving, inspiring little soul who has dictated each step, is taking us along for the ride - while we are humble spectators of the impossible made possible.
One of the most profound lessons has been that we focus on massive outcomes as markers of success - and when you are told your child may not walk again, it's easy to become fixated on the 'first step', it's easy to forget that holding a crayon, eating yoghurt from a tub on his own, writing his name, recalling the alphabet, drawing a heart - are all magical milestones.
As with anything in life, great things are achieved through perseverance and practice.
Warriors aren't born, they are created, through bravery, ritual and an abundance of love.
Beautiful child of ours, you have so much love, the rest is the pure magic of who you are - and we couldn't be more inspired if we tried.
Thank you for choosing us.
You've got a whole team behind you, always ❤️ https://www.facebook.com/116324449074543/videos/12...
#teamben #peace


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Arvydas Mart

Backed with $10.00 On Dec 02, 2017

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Anonymous

Backed with $1.00 On Nov 21, 2017

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Be strong Ben!! We are all praying for a speedy recovery! x x

Guest

Backed with $50.00 On Nov 14, 2017

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All the best. Please help me to fund my event too. Urgent HELP !! Save my family, Save my home. Save my dream.

LEONG CHEE ONN

Posted On Nov 14, 2017

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Anonymous

Backed On Nov 13, 2017 Amount Hidden

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Guys could you please support HelpNonny campaign.God bless

Nonny Tsebo

Posted On Nov 05, 2017

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Dearest Team Ben! Wow where to begin little man! You are an earth angel with a definite purpose in this world. I resonate so much with what you have been through! I contracted meningococcal meningitis 10 years ago. I was in a coma and also had very bad septicemia. The doctors were certain i was on my way out when miraculously i woke up 5 days after being admitted to Sandton Clinic ICU. Sadly i lost my hearing completely but grateful for medical technology as i now hear through my right ear with a cochlear implant. I would ABSOLUTELY LOVE to meet you one day and exchange war stories! I know the road to recovery may seem long and painful but you are the most precious child and i promise you there will be a beautiful, bright silver lining from all of this. To your amazing Mom and family, heartfelt strength and love to you all! There are no words to describe what something like this does within a family unit (both devastating and positive) but you are all amazing. Much love, Penny

Penny Cooper

Backed On Nov 01, 2017 Amount Hidden

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Anonymous

Backed with $50.00 On Nov 01, 2017

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Anonymous

Backed On Oct 29, 2017 Amount Hidden

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Overwhelmed by this little man who’s fought so fiercely

Joanne McLeod

Backed On Oct 22, 2017 Amount Hidden

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