I am raising this issue as a last resort my son has epilepsy and need medical equipment (epilepsy matt and camera) wish I could fund for this my self but I can't :( he has epilepsy diagnosed Aug 2014.. has had up to 17 sezure ( witnessed by myself at night ) in one night but ther accrue every night. . We have tried many approaches to get funding for the appropriate equipment to watch record and alarm us of any needs he has but cannot find it seems I have to do it alone ??.. I cannot stay awake 24/7 as I have him n my other son who is 3 and I'm pregnant again so soo soo tired with her !!??!! I'm at a lost end and he needs these things but I cannot magic 1000 of a magic tree :( x
Recent update.. 19th June 2016.. hospital are useless.. my son has major shakes everyday with his hands and cannot do sinmple tasks writing leaejinf falling badly behind not the same as a 6 year old should be able to accomplish . It's upsetting him as can't do things like legoo and thing he's loves very well :(.. still awaiting consultant appointment to up meds and find out what else is wrong but been quoted October?!? This was two months ago..
In the mean time they have asked how many sezures he has each night.. I cannot possibly stay up all night and check hence why camera and matt are needed I have 2 other children 1 is 3 aidens brother Thomas and also skyla his baby sister At just 3 months old.. it is a hard struggle to stay up all night and all day with all three every day not possible.. I have asked for over night eeg and x amount of tests that apparently are not worth it?!? So the mat and camera might get a true diagnoses for my boy xx any thing we are all grateful for as all helps x