My wife, Lydia, is suffering from Fibromyalgia. Her condition started in May 2016, quickly deteriorated and since November 2016 she basically became functionally impaired and bound in a wheelchair. As she needed to be fed, dressed and looked after, it impacted negatively on our business and finances - to such a point where we lost almost everything.
Initially, the state hospital diagnosed her with Motor Neuron Disease (MND), but later simply changed it to “conversion disorder.” Donations we received enabled us to visit a private neurologist who changed the diagnoses to Functional Neurological Disorder (FND). Medical expenses however did not allow us to continue with private consultations and treatment and we had to go back to the state hospital.
Only in late 2018 she was diagnosed with Fibromyalgia. Fibromyalgia cannot be diagnosed based on symptoms alone. The process of diagnosing fibromyalgia can take months or years. Before reaching a diagnosis of fibromyalgia, doctors must rule out all other conditions that could potentially cause the symptoms.
No one knows how fibromyalgia develops, but many researchers believe it involves an interaction between the nervous system, body chemistry, and muscles that results in an intensification of pain signals.
Symptoms decrease or disappear during periods of remission, only to reappear or worsen with subsequent disease flares. Lydia is experiencing all of the following symptoms:
- Widespread chronic pain is the defining symptom of fibromyalgia. Types of pain vary and are shooting, burning, stabbing, tingling, aching, or throbbing. It is often accompanied by stiffness and numbness.
- Migraines, temporomandibular joint syndrome (TMJ), painful bladder syndrome, and irritable bowel syndrome (IBS) are common and add to the burden of pain. Menstrual pain is also getting worse.
- Cognitive changes, often referred to collectively as “fibro fog” or “cog fog,” include problems with memory, focus, paying attention, processing information, forgetting or confusing words and remembering new things, and organization.
- Fatigue is one of the most common fibromyalgia symptoms, and it can be debilitating. It is not improved with rest. To worsen the situation, sleep disorders such as restless leg syndrome and sleep apnea are common, making it even harder to get a restful night’s sleep.
- Fibromyalgia may heighten sensitivity to bright light, noise, and temperature.
My wife is often depressed and anxious, as these chronic conditions impact heavily on her ability to do things for herself and on her quality of life in general.
A private doctor has now prescribed Lyrica for the pain and during her “better days” it does bring some relief for the nerve pain but due to our financial position it is not always affordable. A Fibromyalgia group she belongs to strongly recommended that she should try Hemp Cannabidiol (CBD). CBD is not the same as marijuana. It is one of many chemicals found in some strains of the marijuana plant. This is the main reason why I decided to re-open the fundraising campaign.
Lydia is only 39 years old and I pray and humbly ask for assistance. She is an amazing person but being clustered in a bed most of the time, with constant pain, sadly has a huge impact on her life.