Aug 28, 2013 at 05:14 pm

August 18, 2013

Update posted by babymiles

Miles has had a good weekend. The last 48ish hours have been better then most of the past week. Little Mr. Miles has been able to keep almost all his food down. Tomorrow is weigh in and we will hopefully see an increase. We spent most the weekend visiting with family and getting used to our new room. One exciting development.... our new chair. We picked up a Poang from ikea yesterday. Most days either Sam or I will spend around 8 hours sitting in the chair with Miles, so it has to be something better than hospital standard. Tuesday will mark 5 weeks since Miles was listed for heart transplant. We want to remind all our friends and family, to please please please sign up yourselves and your family to be organ donors. You can help save someones life. Today Miles and Noah had cuddles for the very first time. Until now Noah has only been able to reach into the crib and pat Miles head. It took about 30 seconds for Noah to become a "protective" big brother, and he wouldn't even let me or mom take Miles away, it was pretty darn precious. Earlier this week, a few of our favourite nurses helped us get Miles footprints on paper. They also took moulds of his feet and made some pretty neat casts. We've been trying to have fun with our boy, whenever the days allow for it.  We are hoping and Praying that this will be the week Miles can start over. Thanks for keeping our family in your prayers.

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