Wheelchair for Nina 6 years old girl

Nina is a 6 year old girl who has Dravet syndrome. She is not able to walk without assistance of second person and maximum of her walk is 200 meters. Now she is using baby trolley from when she was born and we need a help from people of good will and warm heart so we can buy a new wheelchair and she can use them next 10 years. Nina's brother (9 years old), mom and dad appreciate on every donation. Thank you very much and God bless you.

What is Dravet Syndrome?

Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. Dravet syndrome has an estimated incidence rate of 1:15,700, with the majority of patients carrying a mutation in the sodium channel gene SCN1A.

Dravet syndrome is a Developmental and Epileptic Encephalopathy, or DEE, part of a group of severe epilepsies with frequent and difficult to treat seizures and significant developmental delays. Seizures in Dravet syndrome usually begin during the first 2-15 months of life, often in the presence of fever or warm temperatures. Seizures are frequently prolonged, and are not well managed with current medications. Patients present with a variety of seizure types that generally evolve with age. Common issues associated with Dravet syndrome include:

• Prolonged seizures
• Frequent seizures
• Behavioral and developmental delays
• Movement and balance issues
• Orthopedic conditions
• Delayed language and speech issues
• Growth and nutrition issues
• Sleeping difficulties
• Chronic infections
• Sensory integration disorders
• Dysautonomia, or disruptions of the autonomic nervous system which can lead to difficulty regulating body temperature, heart rate, blood pressure, and other issues.