Dear friends! Dear strangers! People who might know us here in Ukraine and people we have never seen before from all over the world!
We are Artem and Anastasiia (Nastya) from Ukraine and here's below our story.
We'd like to avoid pitiful words... There are so much tears around you and us. Sorry, if you find them below. I'll write on-behalf of both of us. My name's Artem. I'm Nastya's boyfriend. And here is our story.
We're usual Ukrainian couple. We're in the beginning of our long life journey. Like any young people, we love, build career, take care about our relatives and dream. At least this is what we were doing before last Monday. Suddenly everything crashed with terrible Anastasiia's diagnosis - Multiple Sclerosis :(
I can't find proper words. It seems everything crashed: our future, our family, not yet born children, our relatives. That was a shock. And only those who faced incurable decease might feel and understand that emotions we felt: upset, grief, despair.
We read lot of materials in Internet (please, don't do it!), stirring up our despair. But in parallel we kept realistic approach and quickly collated all required tests (blood, MRI) and visited best doctor we could find. Yes, no chances, that was Multiple Sclerosis. Nastya requires for urgent treatment and this is what we're going to do. We have money to pay for urgent treatment and we have money to pay for support therapy.
But now here is the purpose of this story... This therapy is life, ongoing and very expensive. Please, don't blame us and don't be skeptic until you finish reading. Both me and Nastya are financial specialists. And immediate decision was to setup fund, that will serve as a buffer to help us to pay for treatment. It might be bank account, accumulating interests, or life insurance policy.
Cost of monthly treatment by Copaxone is USD 500. Average salary in Ukraine is USD 300 and USD 900 in the capital (where we live). As it's really unclear how the disease will go, it might happen Nastya will require for the newest experimental medications - Lemtrada and Ocrevus. The last one appeared 1 year ago. Both of them are highly efficient and provide stable remission. But they are extremely expensive - USD 10,000 - 11,000 per dose (2 doses of Ocrevus are required 2 times per year and 8 doses of Lemtrada are required 1 time per 6-10 years). This is amazing amount :( We don't require for this amount immediately. And may be we won't require at all (I hope and pray)! But I don't want to sit and wait for the worst scenario! I want to be ready to face this challenge. If we collect required deposit (this is ~USD 200,000) interests will cover this expensive treatment. And there will be no need for asking money again and again. Money will be spent for treatment and tests only (deposit will be stable and untouchable; may be in future scientists will find ultimate and efficient treatment for multiple sclerosis; we hope this will be a chance to spend this deposit)
Dear friends! I understand you might say "Hah! Such a cunning and impudent guy!" So many people (especially children) require for help immediately. And I kindly ask you, help them! I assure, even in this pity situation I also donate. But if you have a chance, please, help us too. Take a look into extra package of cigarettes, can of beer or beverage or one more pair of shoes you don't really need for. All this might help somebody. Dear friends! Please, don't criticize me! I love my Nastya and I'll do all my best to help her to live long, healthy and happy life w/o disability.
Thanks for all who read this story! I wish you and your families never faced troubles people describe here in this fund! Be happy and healthy!
P.S. That's not the final. Please, read "Updated" to find more about Nastya and me. Who we are? What's our plan? How are we going to help ourselves? How will money be spent and accountable? We aren't going to sit and wait for help only! We will struggle for better future for us!