Dearest friends, families, relatives, and anyone who could read this, We are in need of your financial support and deepest prayers for our beloved Aen Ode (RC/RZ). My Very Special Son who had Autism, and now currently experiencing a liver infection.---Primary sclerosing cholangitis.
When Aen was about 7 months old, we noticed something unusual. Although he looked good to the people who saw her every day, We thought that he have some unusual habits. So we instantly set an appointment to see his pediatrician. The Doctor was baffled because Aen was is showing symptoms of Autism.
After 2 months monitoring Aen, one thing was very clear — Aen had Autism.
He's almost 6 years old now. Even you can't notice his Autism from the way he looked, you can tell by speaking to him. Until this day, I have to support him for his needed medicines for his Autism to subdue.
He also developed "Scopophobia", the fear of having his picture taken since he was 2 years old. I don't know exactly what caused this, but ,he managed to overcome it with me :)
Last night while we are taking our dinner. Aen suddenly threw up. He signed that his right side is painful. His skin got pale and he got discomfort. We rushed him to the nearest hospital and waited for a day for the results. After the long wait of being obscured, the bad news arrived. He has a liver problem ---- Primary sclerosing cholangitis.
Few days passed, while in his monitoring phase, his skin began to be yellowish in color, blood also run through his nose for almost an hour.
We asked what will be the cure....
The doctors suggest a liver transplant because that life expectancy ranges from 5 to 15 years if the patient does not undergo liver transplantation. :(
Luckily, There are 5 compatible liver donors we have found but we are in a dilemma as the operation cost is very large. His first operation (mild treatment of the scarring of the bile ducts) would cost 150,000 pesos (3000$ in equivalent). And the last one (actual liver transplant) would be around 300,000 pesos (6000$ in equivalent).
That is why we are needing your help. We are needing your support for my only son, Aen,(whose nickname is RC/RZ ) for him to live longer and have his life to its fullest. I am a single mother, But my salary from my freelance work and the help from my families seems to be not enough for the cost of this.
He loves to doodle. I hope someday, he would be a great Architect or a designer. But he can only achieve that if he would live with a normal liver. I, We, hope for your help.
I truly appreciated all the help from my families (most especially Dong, Dina, Bang, Dindo, Papa Dan) and all the kind souls who have given financial, emotional, and spiritual support.
You can donate at our paypal account : (We hope you would prefer sending funds directly to this paypal account if possible due to large fees that might be added)
We are really hoping for any kind of help with the help of this. God bless us all.