URGENT PLEASE HELP BABY ATHIF

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At 2 months old, Athif was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 – a genetic neuromuscular disease that causes muscles to become weak. People with SMA lose a specific type of nerve cell in the spinal cord called motor neurons that control muscle movement. Without these motor neurons, the muscles will not be able to receive nerve signals that make muscles move.

SMA Type 1 – Symptoms appear at birth or within an infant’s first six months of life. Infants with SMA Type 1 have difficulty swallowing and sucking. They don’t meet typical milestones like holding up their heads or sitting. As muscles continue to weaken, children become more prone to respiratory infections and collapsed lungs. Most children with SMA Type 1 die before their second birthday, if left untreated.

We have been informed by doctors that the available treatment for Athif is Zolgensma, a single dosage which would cost close to USD 2.1 million and is a prescription gene therapy used to treat children less than 2 years old with Spinal Muscular Atrophy (SMA) and Risdiplam, a daily dosage drugs which cost MYR 40,400 per bottle (which lasts 50 days).

Given Athif’s current condition, we are faced with the difficult decision by having to proceed with a temporary treatment of Risdiplam while working towards raising sufficient funds for Zolgensma treatment. While the amount of USD 2.1 million is monumental to us, we are hopeful in working towards it as it gives our son the best chance of survival and a better quality of life growing up.

We would appreciate if you could share this fundraising link with your family and friends who might like to help us.

Should any of you may have any links to community groups, potential individual/ corporate sponsors or others who might be able to help, kindly reach out to us via email at [email protected].

Thank you for your prayers, help and support.

Fighting on.

Athif & Family

We sighted doctors letters stating the above mentioned treatment options and have also verified with the physician treating Baby Athif.

Please donate generously to give Baby athif hope and a second chance at life. 100% of your donation will be used for his treatments.