Tasha’s medical care

Update posted by Natasha Lynch On Mar 13, 2020

Hi everyone, its been a rough few weeks. I was admitted to hospital for 2 long weeks. I had problems with my liver, and cant tolerate anything into my stomach, even meds make me feel terrible and have a very sore tummy. Theyve determined this is just progression of my illness and is something called gastroparesis. I had a different feeding tube fitted called an naso-jenunal tube (NJ tube), but unfortunately it failed and was already linked into my stomach, so I'm awaiting a new one to be put in. I am currently coping with very little nutrition and fluids so hoping the NJ tube gets replaced soon.

During my time in hospital I also developed an infection and spiked a very high fever, it turns out my central line (portacath) is infected with a staphlycoccus bacteria 😔 however with some strong oral and IV antibiotics we're hopeful we can save my port and not need to remove it.


That's all for now (I think!), again thank you for your continued support!

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Update posted by Natasha Lynch On Jan 26, 2020

Things have been pretty up and down for Tasha since the start of the year.

Shes had a pretty stubborn infection shes not been able to fully kick and now her chest has joined in the party! Tasha has been referred to see infectious disease specialists as with her immune deficiency and all her tubes and history of sepsis, shes getting some infections that are highly resistant to antibiotics which is leaving few options for treatment. Another reason we need to keep tasha at HOME so we can keep better control of things and reduce further risk of hospital acquired infections.

Tasha has also been referred to rheumatology as theres a high suspicion of an inflammatory arthritis, there's talk of starting tasha on methotrexate which is actually a chemo type drug and would further suppress her immune system, but something is needed to get control of all the inflammation, swelling and stiffness in Tashas joints and help her pain as her pain has deteriorated more in recent months. But discussions need to happen about whether this is safe for Tasha or not.

Again, any help is greatly appreciated to keep Tasha at home where she belongs and to continue living life the best she can.

All we need is 60 people to donate €10 a month, you can set up a recurring donation here on this site and it is completely safe and secure!


Thank you, the Lynch family.

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Update posted by Natasha Lynch On Dec 29, 2019

So we have had Tasha back and forth from the hospital 3 times this week. All with worsening breathing problems.

All we kept getting was 'its bronchitis' have more nebulizers and steroids.

Finally Tasha seems to be turning a corner and her breathing has improved slightly with a new medication and increased nebulizers and more use of her cough assist.

Any chest infection can turn serious for tasha, because she is ventilator dependant and canr cough for herself properly anymore, she has to use a machine called a cough assist to help her clear all of the junk out of her chest. ANY infection actually is serious in mitochondrial disease patients, as its during and the weeks following that they are more at risk of degeneration!

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Update posted by Natasha Lynch On Dec 26, 2019

Well first of all, Merry Christmas to all of Tasha's supporters!

We hope you all had a wonderful day 🎄.

After a lovely quiet morning, Tashas breathing got progressively worse. More breathless, wheezing, ventilator alarms. So we had no choice but to head into hospital to A&E/Emwrgengy department/urgencias. It's a good job we did as Tasha had a nasty wheeze and crackle on her lungs! Many nebulizers and IV steroids later and things started to settle. Thankfully pneumonia was ruled out, but she does have a nasty case of bronchitis! Last time tasha had bronchitis her doctors had to perform a bronchoscopy (whilst she was awake) which was a camera and suction right down to the lungs to clear her chest out, we're hoping it doesnt get that bad this time!

Although a hospital trip on Christmas day wasn't what any of us wanted, we are just thankful to have had another christmas and thankful for the teams in the hospital on christmas day giving their time to help others.

With that being said, we hope 2020 gets off to a better start!

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Update posted by Natasha Lynch On Dec 22, 2019

Hi everyone!


Tasha has been struggling with another infection, then with added stress on top of everything with current situations, she has had a bad few days.

With various people questioning us, we would like to ensure you can contact us directly with any questions you may have and we will always answer you. But please bare in mind we may not get back to you instantly as you can imagine things can get a little hectic at home!

We are preparing for Christmas and just hoping her can enjoy another christmas with Tasha and hope she can have a best day as possible with minimal symptoms.


We currently need 600 euros PER MONTH to pay for tashas carer at home 15 hours a week. The hospital, tasha and us as a family all know tashas current carer and continuity is important as she is also fully trained in EVERYTHING for tashas care which is rather complex.

We appreciate everybody's offer for help, but we hope you understand that tasha needs this routine and it is very complex to train and care for tasha and as we have mentioned, the hospital are happy with Tashas current care situation and are comfortable and confident she is confident in tashas care. Right down to emergency resuscitation, trach changes, trach and vent care, feeding tube, central line aseptic technique, catheter care, hoisting and lifting tasha and ensuring her wheelchair is secured and strapped down into the car properly and how to get tasha in and out of our specially adapted car with a ramp so tasha stays in her wheelchair in the car as she is unable to transfer herself into a normal car. It's a complicated situation and we really do appreciate everybody's offers but it just isnt that simple unfortunately.

Again, thank you for your continuing support for Tasha and us as a family.

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sorry its not alot . sending tonnes of love hope positivity and a dash of patience to deal with the c**kwombles of the world . stay sassy gentle hugs xx

annemarie Stevens

Backed with €10.00 On Jul 22, 2020

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Not much Tash, but hopefully a help xx

Mike Stokes

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lucy kelly

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Sorry I can’t offer more hun, I don’t get much money, but I will ditch a coffee and donate to you. Christmas is especially about giving, so although I cannot donate much, I want to try and help the way I can. I hope people realise that even if they did the same, it all contributes to you getting the care you need. ❤️

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This is Better Andrew, I can contribute a bit more.

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Merry Christmas sweetheart

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Sending love your way xx

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