" it is so heartbroken seeing someone you love, losing his/her dream by rare illness, and you don't know what to do to ease that situation".
Nico 30, suffering from XDP(Xlinked Dystonia Parkinson) "LUBAG" a rare condition were someone cannot control his movements or involuntary movement. Days passed his condition is getting worsed, start with involuntary movement of his cervical neck turns to right and as of this moment his activies like walking eating are getting worsed. He took botox every 3 months and some oral medications as prescribed but as we have see his situations getting worst, that even his balanced in walking already affected that it makes him fall.
The surgery cost Php 2,000,000.00. and we don't have that amount to comply for the said procedure. we need to meet the said amount since his conditions or the symptoms are quick to progress. I am his eldest sister and it really broke me seeing my brother in this condition. He always said that "ate if one day i'll became better i will do my very best to help others who are in the same situations like me". We always keep his spirit high and hopes that one day he will be better. We keep fighting and struggling we always let him know that he is not alone, that we are always here for him.
I am full Heartedly asked for help, for someone who has a pure heart helping others. Thank you so much. I prayed to God for someone like you to blessed you, sustained and showered you many blessings by helping others in need.
Thank you so much.