Sobi Charity Bike Ride for Haemophilia
Fundraising campaign by
Amanda Larsson
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€235.00raised of €360.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 390 km from Mainz to Brussels over three days from Tuesday 2 to Thursday 4 October in order to raise money for the European Haemophilia Consortium (EHC). The funds are used to support projects for increased physical activity and an active life style for haemophilia patients.
This is the third stage of the Sobi Charity bike ride for Haemophilia that started in 2016 from London to Paris, continued in 2017 from Paris to Brussels and now in 2018 we cover the distance from Mainz to Brussels. What is new this year is that EHC will join us for the last 30 km ride to arrive in Brussels where the EHC annual meeting will take place on October 5-7.
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ and has developed a new generation of haemophilia treatments. Sobi’s history of innovation in haemophilia is the foundation for our pioneering research today and for our long-term commitment in supporting the haemophilia community.
Organizer
- Amanda Larsson
- Campaign Owner
Donors
- Marina Auer
- Donated on Oct 10, 2018
- Julia Tunedal
- Donated on Oct 03, 2018
No updates for this campaign just yet
Donors & Comments
- Anonymous
- Donated on Oct 29, 2018
Good job Amanda.... worth the bruises dont' you think ? :)
- Marina Auer
- Donated on Oct 10, 2018
- Julia Tunedal
- Donated on Oct 03, 2018
- Martin Sjögren
- Donated on Oct 03, 2018
Heja!
- Rolf Gulliksen
- Donated on Oct 03, 2018
Keep on rolling!
- Rebecca Linnér-Olsson
- Donated on Oct 03, 2018
Heja dig Amanda!
- Anonymous
- Donated on Oct 03, 2018
- Erika Andersson
- Donated on Oct 03, 2018
- Philip Wood
- Donated on Oct 02, 2018
Enjoy the ride!
- Charlotte af Klercker
- Donated on Oct 01, 2018
Look forward to the updates of the trip. Have fun and thanks for a great effort!
Good job Amanda.... worth the bruises dont' you think ? :)