Sobi Charity bike ride for Haemophilia 2019
Fundraising campaign by
Ewelina Juneja
-
€50.00raised of €360.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 460 km from Bonn to Hamburg from August 29 to September 1, 2019 in order to raise money for the European Haemophilia Consortium (EHC). The funds will be used to support projects for increased physical activity and an active life style for people with haemophilia.
This is the fourth stage of the Sobi Charity Bike Ride for Haemophilia that started in 2016 from London to Paris, continued in 2017 from Paris to Brussels, then in 2018 from Mainz to Brussels and now we cover the distance from Bonn to Hamburg. This is my first time participating in the Sobi Charity Bike Ride and I am looking forward to the physical challenge as well as to visit Germany since I lived in Berlin for about five years.
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 46 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi™
At Sobi, we are transforming the lives of people affected by rare diseases. As a specialised international biopharmaceutical company, we provide sustainable access to innovative therapies in the areas of haematology, immunology and specialty care. We bring something rare to rare diseases – a belief in the strength of focus, the power of agility and the potential of the people we are dedicated to serving. The hard work and dedication of our approximately 1050 employees around the globe has been instrumental in our success across Europe, North America, the Middle East, Russia and North Africa, leading to total revenues of SEK 9.1 billion in 2018. Sobi’s share (STO:SOBI) is listed on Nasdaq Stockholm. You can find more information about Sobi at www.sobi.com.
Organizer
- Ewelina Juneja
- Campaign Owner
Donors
- Anonymous
- Donated on Aug 30, 2019
Trampa på, du är snabbast!!!
- Sofia Medin
- Donated on Aug 30, 2019
Heja heja!!
Wuppertal view from hotel
Update posted by Ewelina Juneja at 05:29 amAfter 90km if ride we reached to Wuppertal. Some of the hills were loooong and the downhills sometimes seemed endless. I felt that using the brakes downhill and looking forward at the same time on a racer is a challenge. Anyhow , I enjoyed the speed. On the way we
Home-to-job training bike (bought in Germany long time back :))
Update posted by Ewelina Juneja at 07:11 amThe bike-training continues after summer break!
Donors & Comments
- Martin Forsberg
- Donated on Aug 30, 2019
Grymt jobbat! Bara att trampa på!
- Anonymous
- Donated on Aug 30, 2019
Trampa på, du är snabbast!!!
- Sofia Medin
- Donated on Aug 30, 2019
Heja heja!!
- Stefan Ernback
- Donated on Aug 29, 2019
Good luck Ewelina!
Grymt jobbat! Bara att trampa på!