My daughter was born 33weeks premature via emergency c-section last July 2, 2018. This was the started of her Neonatal Intensive Care Unit Journey. She was just 1.9kg and was needed to be placed inside the incubator after being examined by her pediatrician at that time. As her pedia informed me on July 3, Serene vomited after she was fed and her stomach enlarged. She has now feeding tube in her mouth. Start of her antibiotics, aminosteril and other vitamins combined in her dextrose.
July 5, Serene started photo theraphy because she was jaundiced (yellowish in color).
By July 7, 2018 We were reffered then to a Pedia Surgeon due to Serene was not also having bowel movements this is the major problem.
July 8 was the start of my Kangaroo Mother Care to her and start of the colonic iirigation procedure. Her feeding was stopped just relying on the IV's attached to her. Her hospital charges began to balloon up to the point we reached being blue tagged from time to time. I am a stay at home mom and my husband earns minimum wage. Just to make ends meet and her to be given the medical attention she needed we already resolve to borrowing money as it is the fastest way to resume whatever medical procedure or test and medicine that is required to her.
July 8- 22, 2018. After having several stomach xrays and every day colon irrigations done she was diagnosed to having Inspissiated Meconium as meconium is still present in her intestine, that it should have gone from after 3 days of birth. This resolved the doctors for Serene to undergo Flouroscopy with water soluble contrast to do the procedure at another hospital due to its unavailability here at her current hospital. Flouroscopy is needed to determine if she has Upper Gastrointestinal Blockage and Colon Blockage. If blockage is seen, she will have to undergo surgery depending on the severity of the blockage. At These phase her weight fluctuated to 1.6kg-1.7kg. Still on continuous antibiotic and was given another variant. Result of the
July 23 She was discharged at NICU and after the procedure She will now be admitted to a private room, same hospital. It was the hospitals protocol. Having to pay for it in much higher price. July 23- 25, 2018 We have limited funds for those 2 ambulance trips and 2 needed procedure, and also reached the hospital's blue tag at the billing section. Whatever financial was needed we borrowed again just for her to make it because my daughter is really fighting.
July 24 xray show that intestines are still enlarged .Serene's flouroscopy results done on the 23rd and 25th were good enough. It was discovered that she has longer large intestines than the normal. As result of no blockage, they begin to feed her on the night of July 25. They start injecting medicine for her red blood cells to regenerate she became anemic. this will prevent her from blood transfusion at the moment.
July 26 We were told by both of her doctors to keep safe whatever test result she has done for future references as she was borm premature and intestine functional problems may arise in the future. We were also told that Serene would have rigid follow up check ups. As early as now they projected certain referrals to other developmental specialist.
Serene's Under observation on gradual feeding and bowel movements. Her feeding tube (ogt) was removed
July 27-29 Under observation with progress both on feeding and bowel movement.
July 30 She is now being considered as outpatient with regular follow through check ups from her doctors and to new referred doctors.
She is still not in harms way, this is the beginning of a more fragile journey having to get out of the hospital and being exposed to the outside environment.
To everyone who prayed for her in her trying phase, to those who continue to pray for her and to those who will pray for her. Thank you very much
Having a premie is a biggie in all aspects. She may be tiny, but she's strong. Normal steps for us, its a big leap for her. Each passing day, its a long journey for her. With these, we are knocking to your kind hearts and asking for financial aid to sustain and ensure her health and proper development, because at this point our family is financially drained from her almost 1month of hospital stay with debts to pay for her to be medically attended. For those who are willing to help out our little girl and our family, and wants to send directly to our bank account, here is my PSBank account details:
account name: Sue Ellen Rose V. Alvina account number: 114-36-1-00668-9